WHO HELPS THE AUTISTICS ORGANIZATIONS IN THE WORLD ?

WHO HELPS THE AUTISTICS ORGANIZATIONS IN THE WORLD ?
(This is a 1000 billion $ question…)
 
Please, anyone, let me know if one day you discover an organization or company (public or private), or « someone » in the world helping the autistics to organize themselves (as networks or associations) to build self-advocacy, self-help, peer support, autonomy, freedom, defense etc. ; without limits of age or « level » or country.
 
We are 1% of the world.
 
I cannot manage to find an answer to this question, this quest.
 
Autism is not a « puzzle » at all for me, but this question, yes definitely.
 
How can we build any autistics organizations, without any means ?????
 
Thanks.
 
Eric LUCAS
 
Posted in - In english -, Interviews / other messages

[en] UN Global Study on Children Deprived of Liberty : Institutionalized children won’t be included

Oral statement by our autistic colleague Erich Kofmel from Autistic Minority International, who is striving to defend the autistics at the UN and WHO in Geneva :

INT_CRPD_OCR_19_26968_E

Source on the website on the United Nations : http://tbinternet.ohchr.org/Treaties/CRPD/Shared%20Documents/1_Global/INT_CRPD_OCR_19_26968_E.doc


More actions by Autistic Minority International : http://www.autisticminority.org/united-nations-conferences/

Posted in - In english -, Autistic testimonies and thoughts, Public oral statements Tagged with: ,

[en] Certificate of Good Practices and Suitability for the Autistics, awarded to Pioneer Concept (Almaty, Kazakhstan)

20170907_-AA-ORG-KZ-PioneerConcept_Certificate-Letter
Posted in - In english -, Reports

[pt]([en]) Encontro com pais na “Casa de Brincar ” (Estado do Rio de Janeiro, Brasil) – Meeting with parents in “Casa de Brincar” (State of Rio de Janeiro, Brazil) with Eric LUCAS – 14/03/2017

Infelizmente, não tem tempo disponível para fazer um relatório sobre esse encontro, nem para processar as gravações de áudio.
As explicações dadas por Eric foram muito apreciadas pelos pais.
A “Casa de Brincar” é um lugar muito bom, onde os pais podem participar dos jogos e da ajuda proporcionada aos seus filhos, e então eles sabem melhor como se comportar com eles em casa.

http://casadebrincar.org.br/

Our sponsors

Unfortunately, there is no available time to make a report about this encounter, nor to process the audio recordings.
The explanations given by Eric were much appreciated byt the parents.
The “Casa de Brincar” is a very good place, where the parents can participate to the games and help provided to their children, and then they know better how to behave with them at home.

 

 

Posted in - Em português -, - In english -, Autistic testimonies and thoughts, Conferences, Talks Tagged with:

[pt]([en]) Encontro em Belo Horizonte (Brasil) com autistas e pais – Meeting in Belo Horizonte (Brazil) with autistics and parents (with Eric LUCAS) – 17/12/2016

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No dia 17 de dezembro de 2016, nos reunimos na Casa dos Direitos Humanos, no centro de Belo Horizonte, capital do Estado de Minas Gerais, para conversas entre autistas e pais, durante 3 horas.
Foi organizado pelo Instituto Superação.
Foi, mais uma vez, muito interessante.

Aqui estão uma foto de alguns dos participantes e uma gravação de áudio (como um clipe do Youtube).
É principalmente em português. Eu falou em inglês (exceto no início, em espanhol) e foi resumido em português.
Eu não tenho tempo para fazer um resumo com atalhos (links) como no passado, mas se um voluntário quer fazê-lo, entre em contato conosco.
Mesmo se você pode corrigir a tradução deste artigo em português. Obrigado.

Eric LUCAS


On the 17th of december 2016, we have met at the House of the Human Rights in the center of Belo Horizonte, the capital city of the state of Minas Gerais in Brazil, for talks between autstics and parents, during 3 hours.
It was organized by the Instituto Superação.
It was, once again, very interesting.

Here are a picture of some of the participants, and an audio recording (as a Youtube clip).
It is mostly in portuguese. I spoke in english (except at the beginning, in spanish) and it was summed up it portuguese.
I do not have the time to make a summary with shortcuts (links) like in the past, but if a volunteer wants to do it, please contact us.
Same if you can correct the translation of this article in portuguese. Thanks.

Eric LUCAS


15338677_1397611496916385_4035885855535808775_n

meeting-autistics-belo-horizonte-2

Nesta foto, você vê apenas os autistas participantes desta reunião:
On this picture, you see only the autistics participating to this meeting : 

meeting-autistics-belo-horizonte_only-autistics


GRAVAÇÃO DE ÁUDIO :
AUDIO RECORDING : 

 


Thanks to our sponsors in Brazil

Posted in - Em português -, - In english -, Autistic testimonies and thoughts, Talks

[en][pt] Meeting with parents in Manaus, Brazil – Reunião com pais em Manaus, Brasil – with Eric LUCAS – 15/11/2016

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On the 15th of november 2016, I’ve been invited to a meeting with parents, for a questions & answers session, which lasted almost 3 hours, in Manaus, the capital city of the state of Amazonas in Brazil. It was very cool.

I would like to find some time someday to put the audio recording online, like I used to do in the past.

On the picture below, you see some of the parents, and some autistics (Bruno Dantas, with the red T-shirt ; Mateus, with the white  stripes ; and me with my cap and my usual masking system).

Eric LUCAS


No dia 15 de novembro de 2016, eu fui convidado para uma reunião com pais, por uma sessão de questãos e respostas, que durou quase 3 horas, em Manaus, a capital do estado do Amazonas no Brasil. Estava muito otimo.

Eu gostaria de encontrar algum dia algum tempo para colocar a gravação de áudio on-line, como eu costumava fazer no passado.

Na figura abaixo, você vê alguns dos pais, e alguns autistas (Bruno Dantas, com a T-shirt vermelho; Mateus, com listras brancas, e eu com o meu boné e meu sistema de máscara de costume).

Eric LUCAS


9301012e-4435-4e35-a670-12ae3629a782

 


Thanks to our sponsors in Brazil

Posted in - Em português -, - In english -, Autistic testimonies and thoughts, Talks Tagged with: , ,

[pt][en] “A celebration of autism and the autistics” : 1º Encontro Brasileiro de Pessoas Autistas (First Brazilian Meeting of Autistic Persons) – Fortaleza, 22-24 september 2016 – with Eric LUCAS

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(DRAFT article by Eric LUCAS)

I have had the great luck of participating to the first national forum of autistics in Brazil, from the 22th until the 24th of september 2016, organized by Abraça in the city of Fortaleza.

“The autistics do not deserve to be rejected just because they are persons who have a “strange” behaviour…”
(This is the spontaneous answer of this young autistic boy, when asked to say something to the world.)

First Brazilian Meeting of Autistics

I was really amazing.
A historic moment for autism.

Certainly one of the best country-level big events for us the autistics, in the world, and definitely an example for the other countries.

It was organized by both autistics and parents, and the mix was perfect ; the autistic were not just “guests” in a “congress about autism”, they were central, for me it was really a celebration of autism and the autistics, in a very good atmosphere, simplicity, sincerity, good sense, true things, many songs, many laughs, some tears… autism is true life !

I have met really fantastic people, proving that every autistic, with his/her originality, can (and should) enrich the world.
The most “magic” moments were when I was with Miguel Angel Fernandez Garcia, a 13 years old autistic boy from Peru, who is “like an angel“, like many autistic kids in the world.
This boy is very peaceful and kind and good…
The simple fact of being close to these kids makes each person better, they irradiate the good, and it is contagious 🙂
Probably this is the most important “autistic quality” (that only the “non-contaminated ones” -by the social system- do have).
That is why it is very important to be very careful with the adaptations, in order not to ruin stupidly some treasures and their power.

It would be long to describe the event, I don’t have the time to make an article about it, but I want to add some other important things :

  • In this event, the problem that was discussed was not autism, but the social system ;
  • We the autistics we could see our common points, see that we have similar thougths about autism and our situation, and therefore be more confident, feel stronger ;
  • Many people (almost everyone) told me that they loved what I explained, that it is so interesting and true etc. : this is important because it shows that my vision of autism and of the world is not just “personal ideas”.

I think that not only autism is not a problem, but the autistics may become more and more necessary against the problems of the world.
When you listen to my conclusion in the part 3 below (which is in english and portuguese) you can surely guess it.

This article is a draft : I have so much to do, that probably it will remain a draft…

Here are the Youtube clips where I talk (all this is not perfect, there were various little problems, but things were made with simplicity and humanity) :


1/ In the opening session (international) :

(it is in portuguese, and the end is cut, but I plan to make a clip with all the original sound (I spoke in english))


2/ When I describe (in spanish and english) my (quickly made) drawing presenting autism and non-autism in the world :

presenting-drawing


3/ My conclusion of the forum (until 3h44 – in english and portuguese – it is sometimes very improvised, we were all very tired) :


I have been also interviewed by a local TV and maybe I will receive the link later.


Thanks again for this very good event, giving hope in the defense of autistics and of the good sense.

 


Thanks to our sponsors in Brazil

Posted in - Em português -, - In english -, Conferences, Public oral statements Tagged with: , ,

[fr][ar] Exposé sur l’autisme, et discussion avec des parents, le 10 septembre 2016 à Rabat (Maroc) – avec Eric LUCAS – عرض عن مرض التوحد، والمناقشة مع الآباء يوم 10 سبتمبر في الرباط (المغرب) – مع اريك لوكاس

MA

(Brouillon d’article, par Eric LUCAS)

Le 10 septembre 2016, dans les locaux du Collectif Autisme Maroc à Rabat, j’ai pu exposer mon point de vue sur l’autisme, et répondre aux questions des parents.

Je prévois de mettre ça en ligne (l’enregistrement audio sur Youtube + les textes de raccourcis, comme d’habitude) mais je suis de plus en plus débordé et je ne sais pas quand je vais trouver le temps pour faire ça. Ca a duré plus de 3 heures.


(مشروع المادة من قبل اريك لوكاس)

10 سبتمبر 2016، في مقر الجماعي للتوحد المغرب في الرباط، وأنا يمكن أن تعرض وجهات نظري على التوحد، والإجابة على الأسئلة من الآباء والأمهات.

أخطط لوضعها على شبكة الإنترنت (تسجيل صوتي على النصوص اختصار يوتيوب +، كالعادة) لكن يغمرني على نحو متزايد، وأنا لا أعرف متى سوف تجد الوقت للقيام بذلك. واستمر أكثر من 3 ساعات.

 

Posted in - En français -, - بالعربية -, Autistic testimonies and thoughts, Talks Tagged with:

[fr][ar][en] Conférence par Eric LUCAS au Maroc – المؤتمر اريك لوكاس في المغرب – Conference by Eric LUCAS in Morocco (8 september 2016)

MA

(Brouillon d’article, par Eric LUCAS)

Le 8 septembre 2016, j’ai été invité pour parler de ma vision de l’autisme, et d’autres informations utiles, dans une conference organisée par une association d’autisme à Tétouan.

Voici un article dans la presse locale (en arabe).

Il y avait plus de 50 parents (et quelques autistes) et ils ont trouvé cela intéressant.

J’ai été bien reçu (avec peut-être trop d’honneurs) par les organisateurs, mais de toute façon le plus important est que les parents peuvent maintenant mieux comprendre l’autisme et leurs enfants.

Je prévois de mettre ça en ligne (l’enregistrement audio sur Youtube + les textes de raccourcis, comme d’habitude) mais je suis de plus en plus débordé et je ne sais pas quand je vais trouver le temps pour faire ça. Ca a duré plus de 3 heures.


(مشروع المادة، من قبل اريك لوكاس)

في 8 سبتمبر 2016، ولقد وجهت الدعوة للحديث عن رؤيتي لمرض التوحد، والمعلومات المفيدة الأخرى، في مؤتمر نظمته جمعية التوحد في تطوان المنظمة.

هنا هو مقال نشر في الأخبار المحلية (باللغة العربية).

كان هناك أكثر من 50 الوالدين (وبعض المتوحدون) ووجدوا أنها مثيرة للاهتمام للغاية.
لقد وردت بشكل جيد (ربما مع عدد كبير جدا من مرتبة الشرف) من قبل المنظمين، ولكن على أي حال والأكثر أهمية هو أن الآباء يمكن أن نفهم الآن أفضل التوحد وأطفالهم.

أخطط لوضعها على شبكة الإنترنت (تسجيل الصوت على النصوص المختصرة يوتيوب +، مثل العادة) ولكن أنا أكثر وأكثر طغت، وأنا لا أعرف متى سوف تجد الوقت للقيام بذلك. واستمر أكثر من 3 ساعات.


(Draft article, by Eric LUCAS)

On September 8, 2016, I’ve been invited to talk about my vision of autism, and other useful informations, in a conference organized by an autism association in Tetouan.

Here is an article in the local news (in arabic).

There were more than 50 parents (and some autistics) and they found it very interesting.

I have been well received (with maybe too many honors) by the organizers, but anyway the most important is that the parents can now understand better autism and their kids.

I plan to put it online (audio recording on Youtube + shortcut texts, like usual) but I am more and more overwhelmed and I don’t know when I will find the time to do it. It lasted more than 3 hours.

Posted in - En français -, - In english -, - بالعربية -, Autistic testimonies and thoughts, Conferences Tagged with: ,

[en] Article about Karim BENABDESLAM, Asperger in Morocco, and about the situation of autism in Morocco (8 october 2015)

MA

Here is a very interesting article about our friends in Morocco (Karim BENABDESLAM, and Collectif Autisme Maroc)

Broken Promises: The fight to educate children with disabilities in the Middle East and North Africa


And here are some clips made with Karim in 2014 and 2015 :

[ar][fr] الدعوة إلى إنشاء تمثيل الحركة التوحد في حد ذاتها في المغرب وفي العالم العربي – Appel pour créer un mouvement de représentation des autistes par eux-mêmes au Maroc et dans le monde arabe

[ar][fr] أفكار لاسبرجر المغربي التوحد – Pensées d’un autiste Asperger marocain

Posted in - In english -, Autistic testimonies and thoughts, Interviews / other messages Tagged with: , , ,

[fr] [en] Conférence de Josef SCHOVANEC à l’Hôtel de Ville de Montréal le 9 mai 2016

CA

1/2

2/2

Posted in - En français -, - In english -, Autistic testimonies and thoughts, Conferences

[en] [np] Meeting with autistics’ parents in Nepal – नेपाल autistics ‘नातेदार सँग भेटघाट – (with Eric LUCAS) – May 2nd 2016

NP

Here is the audio recording of a discussion between parents of autistic children and Eric LUCAS (“Asperger” autistic self-advocate), at the headquarters of AutismCare Nepal Society, Kathmandu, on may 2nd 2016.
The meeting lasted more than 3h30.

यहाँ May 2nd 2016 मा autistic बच्चाहरु र एरिक लुकास (“Asperger” autistic आत्म-अधिवक्ता), AutismCare नेपाल सोसाइटी, काठमाडौँ, को मुख्यालय मा आमाबाबुलाई बीच छलफल छ।
बैठक 3h30 भन्दा बढी लामो थियो।


Part 1 of 2 – 2 को भाग 2  (1h50’05”)

(click the links to listen in the desired language)
(इच्छित भाषामा सुन्न लिंकमा क्लिक गर्नुहोस्)

0:00:00 – Beginning – (closing the door, getting more light, switching off the fan because of the noise) – introduction – about audio recording, cards, no photos
0:02:28 – सुरु – (ढोका बन्द थप प्रकाश प्राप्त, किनभने हल्ला को प्रशंसक बन्द स्विच) – परिचय – अडियो रेकर्डिङ बारेमा, कार्ड, कुनै फोटो
0:03:53 – “I discovered that I am Asperger 3 years ago, but before this, I had many problems”
0:04:36 – “म Asperger हुँ भनी 3 वर्ष पहिले पत्ता, तर यो पहिले, म धेरै समस्या थियो”
0:05:05 – The movie ‘My name is Khan” : discovering “Asperger”, understanding all the difficulties, like when you switch on the lights
0:06:00 – चलचित्र ‘मेरो नाम खान छ “: खोजी” Asperger “, सबै कठिनाइ, समझ जब तपाईं रोशनी मा स्विच जस्तै
0:06:21 – Official diagnostic – creation of an autistics’ association in France (Alliance Autiste)
0:06:52 – आधिकारिक निदान – फ्रान्स मा एक autistics ‘सम्बद्धता सिर्जना (गठबंधन Autiste)
0:07:09 – Difference between “Alliance Autiste” (association in France) and “Autistic Alliance” (international concept)
0:07:33 – “गठबंधन Autiste” (फ्रान्स सम्बद्धता) र “Autistic गठबंधन” (अन्तर्राष्ट्रिय अवधारणा) बीच फरक
0:07:53 – “I will talk a little bit about me but mostly about autism, and you will be able to ask many questions after this”
0:08:40 – “म मेरो बारेमा तर ज्यादातर Autism बारेमा थोडा कुरा हुनेछ, र तपाईं यस पछि धेरै प्रश्न गर्न सक्षम हुनेछ”
0:09:08 – (beeing a little bit disturbed by noises and people moving – need to retrieve the thread of my thoughts)
0:09:30 – (भइरहेको थोडा शोर र मान्छे सारेर विचलित – मेरो विचार को मुद्दा पुन: प्राप्त गर्न आवश्यकता)
0:09:45 – About our association in France – our report to the Committee of the Rights of the Child at the United Nations – since then, we are consulted by our government
0:10:36 – संयुक्त राष्ट्र मा बाल को अधिकार को समितिलाई हाम्रो रिपोर्ट – – फ्रान्स हाम्रो सङ्गति बारे तब देखि, हामी हाम्रो सरकार द्वारा परामर्श छन्
0:11:18 – (disturbed by the view of a boy swinging outside) – “In my childhood, I did not go with the other children, but I was able to speak”
0:12:16 – (एक केटा झूल को दृश्य द्वारा विचलित बाहिर) – “मेरो बाल्यकाल मा, म अन्य बच्चाहरु संग जानु भयो, तर म बोल्न सकें”
0:12:42 – Rather normal schooling, but problems and suffering because being sent to a special center for children “who have problems”
0:13:31 – बरु सामान्य शिक्षा, तर समस्या र दुःख छोराछोरीलाई लागि “जसले समस्या” एक विशेष केन्द्रमा पठाइएको छ किनभने
0:14:06 – End of studies and beginning of professionnal life
0:14:35 – अध्ययन को अन्त र व्यावसायिक जीवनको सुरुवात
0:15:03 – DJ work : you have to please to people – a way of communicating without the problems of language
0:15:51 – डीजे काम: तपाईं मानिसहरूलाई खुसी पार्न छ – भाषा को समस्या बिना संचार को एक तरिका
0:16:22 – During the night, I was adapted to a kind of “micro-society” appreciating “being out of the box”, but in the daytime, I had problems with everyone
0:17:12 – राती, म “बक्स बाहिर रहेको” अधिमूल्यन “माइक्रो-समाज” को एक प्रकारको अनुकूल थियो, तर दिन मा, म सबैको साथ समस्या थियो
0:17:43 – Between the ages of 20 and 30, I started to think that maybe I had a psychological trouble, because everyone was telling me that “I had a trouble” and because actually I had problems with everyone
0:18:24 – 20 र 30 को उमेर बीच, म किनभने सबैलाई मलाई बताइरहेका थिए “म एक समस्या थियो” किनभने वास्तवमा म सबैलाई समस्या थियो, सायद म एक मनोवैज्ञानिक समस्या थियो कि सोच्न सुरु
0:18:58 – Because I am very logical, I went to a psychiatric hospital by myself (which was a big error)
0:20:02 – म धेरै तार्किक छु किनभने, म आफु एक मनोरोग अस्पताल गए (जो एक ठूलो त्रुटि थियो)
0:20:44 – (my age) – at that time, Asperger was not known – I had to control my emotions when explaining to the doctors, but they did not believe me, and they reject me
0:23:14 – (मेरो उमेर) – समय मा, Asperger ज्ञात थिएन – म जब डाक्टर बताउँदै मेरो भावना नियन्त्रण गर्न थियो, तर तिनीहरूले मलाई विश्वास थिएन, र तिनीहरूले मलाई अस्वीकार
0:24:36 – The same doctors who at first were saying that I had nothing to do in the hospital, decided after one week that I had a serious psychological trouble, and forced me to hospitalisation without consent, which lasted 15 months, which is horrible because you don’t know how much time it will last, you don’t get any justifications, you lose your self-esteem etc. – Now, I defend the “deinstitutionnalization”
0:26:11 – भयानक छ जो तपाईं डन किनभने ’15 महिना लामो नै डाक्टर पहिलो म अस्पताल मा गर्न केही थिएन भन्दै थिए, म एक गम्भीर मनोवैज्ञानिक समस्या थियो कि एक हप्ता पछि निर्णय, र सहमति बिना hospitalization मलाई बाध्य गर्ने, टी थाहा यसलाई हुनेछ कति समय, तपाईं कुनै पनि justifications प्राप्त छैन, तपाईं आफ्नो आत्म-सम्मानलाई आदि गुमाउन – अब, म “deinstitutionnalization” रक्षा
0:27:31 – Now the governmental High Health Authority is consulting me in order to make recommendations for the autistic adults
0:29:22 – अब सरकारी उच्च स्वास्थ्य प्राधिकरण को autistic वयस्क लागि सिफारिसहरू बनाउन क्रममा मलाई परामर्श छ
0:30:34 – I may not look like your children, but 1/ there are people who were non-verbal children and who now make conferences
0:31:38 – म छोराछोरीलाई जस्तो नहुन सक्छ, तर 1 / जो गैर-मौखिक छोराछोरीलाई थिए र मानिसहरू छन् जो अहिले सम्मेलन बनाउन
0:32:26 – I can often manage to guess or to find some things about the functionning of “severe” autistics, by making comparisons with my life
0:34:00 – म अक्सर मेरो जीवनको तुलना गरेर, अनुमान गर्न वा “गंभीर” autistics को कामकाज बारेमा केही कुराहरू पत्ता लगाउन व्यवस्थापन गर्न
0:34:56 – (Introduction to a little text about autism, that I wrote this morning, and that I will read now)
(you may see the full text, in various languages, here)
0:35:27 – (म यो बिहान लेखे एउटा सानो Autism बारेमा, पाठ परिचय, र म अहिले पढ्न भनेर)
(तपाईं पूर्ण पाठ, विभिन्न भाषामा, यहाँ हेर्न सक्छु)
0:35:48 –
“What is called “autism” is the characteristic of the human beings strong enough to be, from the beginning of life, not influenced by the artificiality and absurdity of the current society.”
0:36:05 –
“के भनिन्छ “Autism” जीवन को सुरुदेखि, वर्तमान समाज को बनावट र absurdity प्रभावित छैन, हुन पर्याप्त बलियो मानव जगतले को विशेषता छ।”
0:36:16 – (problem with the open door) (खुला ढोका संग समस्या)
0:36:38 –
“They keep their potential unspoiled, especially at the neurological level, which allows them to keep a naturally high sensitivity, and the original qualities of every human being at the beginning of his life (innocence, sincerity, kindness …) without being distorted and perverted by the social environment and its stupid conventions.”
0:37:11 –
“तिनीहरू सम्भावित unspoiled को आफ्नो जीवन (निर्दोष, निष्कपटता, दया …) को सुरुमा हरेक मानव को मूल बिना गुणहरू विकृत भइरहेको विशेष गरी, जुन उनलाई एक स्वाभाविक उच्च संवेदनशीलता राख्न अनुमति दिन्छ को स्नायविक स्तर, मा, राख्न, र र सामाजिक वातावरण र यसको मूर्ख सम्मेलन द्वारा पतित। “
0:38:06 – (little problems of noise with some autistic children present, and the door not always closed)  (वर्तमान केही autistic बच्चाहरु संग हल्ला सानो समस्या, र सधैं बन्द छैन ढोका)
0:38:21 –
“They are of course not interested in the absurdity (nonsense) and concerns of today’s society, which is artificial and “lost”, and secondly they feel that the more they will be in contact with it, the more they will lose their authenticity and integrity, being “polluted” and “corrupt”,” …
0:38:58 –
“हराएको “तिनीहरूले absurdity (बात) र कृत्रिम र जो आजको समाज, को चिन्ता रुचि छैन पाठ्यक्रम हो” “, र दोश्रो तिनीहरूले थप संग उनि सम्पर्क हुनेछ भन्ने महसुस, अधिक उनि आफ्नो प्रामाणिकता हार र निष्ठा, हुनुको “प्रदूषित” र “भ्रष्ट”, “…”
0:39:38 – (explanations)
…”which is contrary to their essence.”
0:40:02 – (व्याख्या)
… “आफ्नो सार विपरीत छ।”
0:40:32 – (explanations)
0:40:47 – (व्याख्या)
0:41:02 –
“That is why there is no desire to reach out to others, and that is why there are blockings in the communication, which are in fact a kind of “self-protection”. “
0:41:14 –
आत्म-सुरक्षा “त्यो त्यहाँ अरूलाई अघि बढ्न कुनै इच्छा छ, र त्यहाँ जो वास्तवमा एक प्रकारको हो संचार मा blockages, किन हो किन छ” “।”
0:41:44 –
“When an autistic still communicates with this society, it is in an “emulation” mode, or “simulation of a normal person”, but retaining (keeping) anyway their own personal referential and thought system, which explains misunderstandings and unsuitabilities.”
0:42:06 –
“अनुकरण “एक autistic अझै पनि यो समाज संग संचार, यो एक छ” “मोड, वा” सामान्य व्यक्तिको सिमुलेशन “गलत अर्थ र unsuitabilities बताउँछन् जो जसरी आफ्नै व्यक्तिगत referential र विचार प्रणाली, तर retaining (पालन गरेमा)।””

0:42:56 – (explanations about the sentence and the difficulties to explain it – the sentence itself is an example of what is explained in the sentence (communication difficulties))
0:43:49 – (को वाक्य बारेमा व्याख्या र कठिनाइको यो व्याख्या गर्न – को वाक्य नै पनि वाक्यमा व्याख्या छ के को एक उदाहरण हो (संचार कठिनाइ))
0:44:24 – (explanation about the apparent complexity, due to the difference of referentials)
0:44:48 – (को वाक्य बारेमा व्याख्या र कठिनाइको यो व्याख्या गर्न – को वाक्य नै पनि वाक्यमा व्याख्या छ के को एक उदाहरण हो (संचार कठिनाइ)
0:45:14 – (question by a parent about something written by Temple Grandin – more explanations about the different referentials, for instance in humor)
0:46:55 – (प्रश्न मन्दिर Grandin द्वारा लिखित कुरा बारे अभिभावक द्वारा – विभिन्न सन्दर्भहरू बारेमा थप व्याख्या, हास्य मा उदाहरणका लागि)
0:47:29 – (funny example of different referentials, with trousers and backpack at airport)
0:49:23 – (विभिन्न referentials को हास्यास्पद उदाहरण, विमानस्थलमा सुरुवाल र झोला संग)
0:49:54 – (प्रश्न अभिभावक द्वारा – स्पष्टतः मलाई जस्तै “उच्च कामकाज” autistic बीच क्षमता को फरक बारेमा, र “कम कामकाज” वाला)
0:50:18 – (question by a parent – apparently about the difference of potentials between a “high functionning” autistic like me, and “less functioning” ones)
0:50:48 – (“You should be happy to have an autistic child ; there are always possibilities to learn how to be adapted”)
0:51:16 – (“; त्यहाँ सधैं छाँटकाँट गर्न कसरी सिक्न सम्भावनाहरू छन् तपाईंले autistic बच्चा छ आनन्दित हुनुपर्छ”)
0:51:35 –
“We are constantly assaulted by all sorts of aggressions, that we feel through the neurological system (with the senses and the brain). These aggressions are coming almost always, from the others, from a society victim of its own system.”
0:52:15 –
“हामी निरन्तर हामी स्नायविक प्रणाली (होश र मस्तिष्क संग) मार्फत महसुस भनेर आक्रामकता को सबै प्रकार, द्वारा assaulted छन्। यी आक्रामकता लगभग सधैं, अरु देखि, आउँदै छन् यसको आफ्नै सिस्टम को एक समाज सिकार देखि।”
0:52:36 –
“Consequently, we will be irritated, but not the others, since, for them, the nonsense and inconsistencies are “normal” and since they are less sensitive, due to their formatting and their limitations, which makes that they don’t see anything of what we are seeing and which is aggressing us.”
0:53:00 –
“फलस्वरूप, हामी रिसले हुनेछ, तर अरू देखि, तिनीहरूलाई लागि, बात र inconsistencies छन्” सामान्य “र तिनीहरू कारण तिनीहरूले केहि देख्नुहुन्न कि बनाउँछ जो आफ्नो ढाँचा र आफ्नो सीमितता, गर्न, कम संवेदनशील भएकोले के हामी देख्दै हुनुहुन्छ र जो हामीलाई aggressing छ। “
0:53:29 –
“The irritation and the inability to communicate, to find solutions and a relief will inevitably, sooner or later, generate a nervous breakdown and, only it is at this time, that the others will realize that there is a problem.”
0:53:46 –
“द जलन र नसक्नुको समाधान खोज्न, कुराकानी गर्न र एक राहत अनिवार्य, ढिलो होस् वा चाँडो, एक स्नायु बिरामी उत्पन्न र, हुनेछ मात्र यो अरूलाई एउटा समस्या छ भन्ने महसुस हुनेछ, यो समय छ।”
0:54:12 –
“As they do not see the problems that we face, they think that the problem is internal to us, and they call it “troubles”.”
0:54:22 –
“तिनीहरूले हामीले सामना समस्याहरूलाई हेर्न छैन, तिनीहरूले समस्या हामीलाई आन्तरिक छ भन्ठान्छन् र तिनीहरूले कल” समस्याहरूको “।”

0:54:45 –
“Instead of providing solutions and accommodations to the things that make us suffer, and that they refuse to see because they are formatted by the “normalitaristic” majority system, they want to “cure” us, and then we suffer all kinds of injustices and nonsense treatments (such as forced hospitalization, medicines), not to mention, otherwise, bullying, exploitation, segregation, etc.”
0:55:20 –
normalitaristic “बरु किनभने तिनीहरूले द्वारा ढाँचामा छन् हेर्न इन्कार भनेर हामीलाई दुःख, र कुराहरू समाधान र आवास प्रदान” “बहुमत प्रणाली, तिनीहरूले चाहनु” उपचार “हामीलाई, र त्यसपछि हामी अन्याय सबै प्रकारका दुःख र बात उपचार उल्लेख छैन, अन्यथा, बदमासी, शोषण, अलगाव, आदि (जस्तै बाध्य hospitalization, औषधीको रूपमा) “
0:55:56 –
“Then this makes us sad, depressed, embittered, desperate, sometimes suicidal, and more irritable and frustrated over the years.”
0:56:09 –
“त्यसपछि यो हामीलाई, दुःखी निराश, embittered, लागिपरेको, कहिलेकाहीं आत्महत्या, र थप पिन्चे र वर्ष निराश बनाउँछ।”
0:56:35 –
“Given that the doctors, who are formatted by the system to be doctors, do not understand anything in all that (apart from some rare exceptions),”
0:56:45 –
“प्रणाली द्वारा ढाँचामा छन् जो डाक्टर, डाक्टर हुन कि (केही दुर्लभ अपवाद अलग्गै) सबै कि केही बुझिन दिइएको,”
0:56:56 –
“they see us as persons “having a psychological problem”.”
0:57:00 –
एक मनोवैज्ञानिक समस्या भएको “हामीलाई व्यक्ति रूपमा हेर्न” “।”
0:57:08 –
“And since they see us as “sick”, and they consider themselves superior and allowed to take care of us, then they are not bothered by the fact that they do not understand us, “
0:57:21 –
बिरामी “अनि तिनीहरूले हामीलाई रूपमा हेर्न देखि” “, र तिनीहरूले त्यसपछि तिनीहरूले वास्तवमा द्वारा पाऱ्यो छैन हामीलाई नबुझेका, श्रेष्ठ र हामीलाई हेरचाह गर्न अनुमति आफूलाई विचार,”
0:58:02 –
“and instead of questioning themselves and their inability to understand, they just think that they if do not understand us it’s simply because we have “a problem in the head”, which, in the best case, they call “autism” .”
0:58:32 –
“जो, उत्कृष्ट मामला मा, तिनीहरूले कल,” टाउको मा एक समस्या “र सट्टा आफू र बुझ्न आफ्नो नसक्नुको सोधपुछ को, तिनीहरू केवल यदि तिनीहरूले हामीलाई बुझ्न हामी छ किनभने यो केवल छ भन्ने लाग्छ”Autism “।
0:58:53 – (now it is the time for “open discussion”)
0:59:04 – (अब यसलाई “खुला छलफल” को लागि समय छ)
0:59:27 – (question about adolescence) “My son wants to express some things but we don’t understand ; he is more irritated…”
– (answer) “It is a very difficult part of life… (bad personal memories)”
– (precisions about the question) “When it is the time of puberty, what phases do they go through, and how can we help ?”
1:02:05 – (answer) “The teenager will be irritated mostly because he can’t be understood – usually we have explanations and justifications foe what we do, but it is ignored, blocked, not accepted by the others (“it is bad / it is wrong / you should not do that / you should do like everyone does…”) – they don’t believe us – even when they believe, they don’t care – there is the frustration about the primary problem, but also the frustration about the inability to communicate”
1:03:46 – (other questions from parents, rather similar – children unable to communicate – what are the problems that they face during adolescence – when the child gets aggressive, what should be done ?)
1:05:17 – (answer) Primary frustration (being blocked or annoyed), secondary frustration (unability to be understood) – the inconsistencies, things not logical, not fair – example of the irritation because a solar shower bag was not folded 3 times (to prevent leaks) – very important : the very high sensitivity to the injustices
1:08:11 – (जवाफ) प्राथमिक निराशाले (अवरुद्ध वा नाराज भइरहेको), माध्यमिक निराशाले (unability बुझेका गर्न) – को inconsistencies, कुरा तार्किक छैन, निष्पक्ष छैन – को जलन को उदाहरण एक सौर शवर झोला 3 पटक (को लिक रोक्न जोडेको थियो किनभने ) – धेरै महत्वपूर्ण: अन्याय गर्न धेरै उच्च संवेदनशीलता
1:09:47 – Things which are looking like very little details for you may be very important for us
1:10:03 – कुरा तपाईं को लागि धेरै सानो विवरण जस्तै देख रहे जो हाम्रो लागि धेरै महत्वपूर्ण हुन सक्छ
1:10:23 – The first inconsistency in this example
1:11:10 – यो उदाहरण पहिलो inconsistency
1:11:50 – The other inconsistency or unfair thing : the feeling of being not respected
1:12:47 – अन्य inconsistency वा अन्याय कुरा: सम्मान छैन भइरहेको को भावना
1:13:17 – There is also the question of the different referentials (the justifications, which are rarely analyzed or expressed)
1:14:49 – विभिन्न referentials (को justifications, शायद विश्लेषण वा व्यक्त जुन) को प्रश्न पनि छ
1:15:42 – Our irritations are always caused by neurological aggressions (sensory, or mental)
1:16:51 – हाम्रो irritations सधैं स्नायविक आक्रामकता कारण छन् (संवेदी, वा मानसिक)
1:17:15 – The different phases in what is called “troubles” : 1/  we receive an aggression (sensory or mental, or both)
1:18:21 – के भनिन्छ “समस्याहरूको” मा विभिन्न चरणहरु: 1 / हामी एक आक्रमण प्राप्त (संवेदी वा मानसिक, वा दुवै)
1:18:50 – (follow-up) We are the only ones seeing the problem, and of course we want to stop it, to find solutions
1:19:22 – (फलो-अप 1 / को) हामीले समस्या देखेर मात्र हुन्छन्, र पाठ्यक्रम हामी समाधान खोज्न, यसलाई बन्द गर्न चाहनुहुन्छ
1:19:58 – (live example with the door rarely closed) I can’t feel comfortable with the door open, because anyone can enter anytime, “in the middle of what I’m saying” and make me “lose the thread of my thought” – and many autistics would feel not respected or offended, with such situations (not being taken into account)
1:21:59 – “म भन्दै छु के को बीचमा” (शायद बन्द ढोका संग उदाहरण बाँच्न) म, खुला ढोका संग आराम महसुस गर्न सक्दैन कसैले कुनै पनि समयमा प्रविष्ट गर्न सक्नुहुन्छ किनभने, र मलाई “मेरो विचार को मुद्दा गुमाउन” बनाउन – र धेरै autistics महसुस सम्मान हुनेछ वा आहत, त्यस्तो परिस्थितिको (खातामा लिएको भइरहेको छैन)
1:23:01 – There is the “environmental problem” (uncomfortable open space), and the “social problem” (being not understood, feeling of being not respected, neglected…)
1:23:40 – त्यहाँ “पर्यावरण समस्या” (असहज खुला ठाउँ), र “सामाजिक समस्या” छ (भइरहेको बुझिएन, सम्मान छैन भइरहेको को भावना, उपेक्षित …)
1:24:10 – (this was the phase 1/)
– Phase 2/ : When you cannot fix the problem by yourself, then you have to ask to others, and then the problems are starting…
1:25:15 – (यो चरण 1 थियो /)
– चरण 2 /: जब तपाईं आफैलाई समस्या समाधान गर्न सक्दैन, त्यसपछि तपाईं अरूलाई सोध्नु छ, र त्यसपछि समस्या शुरू गर्दै छन् …
1:25:48 – The others (which can be the family) don’t understand the problem because they don’t FEEL it – if they were experiencing the problem themselves, they would already have taken measures to fix it
1:26:28 – तिनीहरूले पहिले नै यसलाई ठीक गर्न उपाय लिएको थियो, तिनीहरूले समस्या आफूलाई अनुभव थिए भने – अरूलाई (जो परिवार हुन सक्छ) समस्या बुझ्न तिनीहरूले महसुस किनभने गर्छन् छैन
1:26:52 – The new problem is that the others don’t believe you, or they think that you are exaggerating – therefore, they don’t want to cooperate, they will not help you – then you continue to suffer from the original problem, but now you suffer also from the denial of help – it is very frustrating, irritating, and sometimes saddening
1:27:48 – तपाईं त तपाईं मूल समस्या ग्रस्त जारी, तर अब – तिनीहरूले मदत गर्नेछ तपाईं, यसकारण तिनीहरू सहयोग गर्न चाहँदैनन् – नयाँ समस्या अरूलाई विश्वास नगर्नुहोस्, वा तिनीहरूले तपाईं exaggerating भन्ठान्छन् मद्दत को इन्कार देखि पनि ग्रस्त – यो धेरै, निराशा रिस, र कहिले काँही saddening छ
1:28:31 – You have the two problems (the sensory / physical one, and the “social” / injustice one) – you focus on the problems, then you feel the problems deeper – you have bad thoughts and memories about such problems – and then all this makes an enormous problem in the head
1:30:31 – तपाईं दुई समस्या (संवेदी / शारीरिक एक, र “सामाजिक” / अन्याय एक) छ – तपाईं यस्तो समस्या बारेमा खराब विचार र सम्झनाहरु छन् – – र त्यसपछि यो सबै बनाउँछ तपाईं समस्या ध्यान केन्द्रित, त तपाईं समस्या गहिरो महसुस टाउको मा एक भारी समस्या
1:32:05 – It is a vicious circle – my neurological mental system will be irritated, then I will feel more acutely the initial problem (sensory), and so on, it will grow and grow until an “explosion” (a crisis) which will come sooner or later
1:33:08 – यो एक भीषण सर्कल छ – मेरो स्नायविक मानसिक सिस्टम रिसले हुनेछ, त्यसपछि म प्रारम्भिक समस्या (संवेदी) महसुस हुनेछ थप acutely, र यति मा, यो बढ्न र बढ्नेछ एक “विस्फोट” सम्म (एक संकट) ढिलो हुनेछ जो वा पछि
1:33:55 – The crisis will come, and then the people will start to notice you – they don’t understand all the problems described above, and they see only the crisis – they will just make a relation between “aggressivity” (or shouting etc) with autism
1:34:47 – संकट आउनेछ, र त्यसपछि मानिसहरू याद गर्न सुरु हुनेछ – तिनीहरूले माथि वर्णन सबै समस्या बुझ्न र तिनीहरूले मात्र संकट देख्न – तिनीहरूले केवल “aggressivity” बीच एक सम्बन्ध गर्नेछ (वा कराउन आदि) Autism संग
1:35:24 – It would be good if you could analyse the situations (like I do) with your children, not with the light of the “normal system”
1:36:09 – तपाईं छैन “सामान्य सिस्टम” ज्योति संग, छोराछोरीलाई संग परिस्थिति विश्लेषण भने (म के जस्तै) यो राम्रो हुनेछ
1:36:45 – Try to understand the thoughts of your child, and allow him to try to explain, instead of condemning or reproaching immediately, otherwise he will not even bother to try – you have to be open and humble, and you will see that the situation is not what you thought at first
1:37:57 – खुला र नम्र हुन तपाईं-छ, र que ला स्थिति छैन देख्नु हुनेछ – आफ्नो बच्चा को विचार _him_ बुझ्न, र अनुमति अन्यथा त्यो पनि प्रयास गर्न चिन्ता छैन, बरु आलोचना वा तुरुन्तै समय reproaching को, व्याख्या गर्न प्रयास गर्ने प्रयास गर्नुहोस् के पहिलो तपाईं लाग्यो
1:38:42 – (question) “Can you explain more deeply about these situations” – (answer) “Yes, I can”
1:39:05 – (problem of the children who don’t talk) – Try to analyze with ALL the details and the history of the problem, and detect (like a police work) the little inconsistencies – Example of the folded blanket
1:41:07 – (कुरा नगर्ने को बच्चाहरु को समस्या) – सबै विवरण र समस्या को इतिहास संग विश्लेषण गर्न प्रयास गर्नुहोस्, र पत्ता लगाउन (जस्तै एक प्रहरी काम) साना inconsistencies – यो जोडेको कम्बल उदाहरण
1:42:40 – You have to look for the “environmental details” (like label itching, temperatures, colors etc.) and also for the “social details” (things that could be seen as unfair) – try to change or correct many things, until you find
1:44:07 – के तपाईं “पर्यावरण विवरण” को हेर्नु र aussi को “सामाजिक विवरण” को लागि (त्यो कुरा अन्याय रूपमा देख्न सकिएन) (खुजली, तापमान, रंग, आदि जस्तै लेबल) – सम्म, तपाईं फेला, उचित धेरै कुराहरू आदान प्रदान गर्न वा प्रयास
(cut)
1:45:25 – Example about the things that I have to glue, in order to prevent people from moving them – the most important is to try to adapt, to reach the kid – the environment is very important : no aggressions
1:47:24 – कुराहरू उदाहरण एम सार्दा देखि रोकथाम मान्छे रोक्न क्रममा गोंद गर्न, म-छ त्यो – सबैभन्दा महत्वपूर्ण बच्चाहरु पुग्न भिज्न, प्रयास छ – वातावरण धेरै महत्त्वपूर्ण कुरा, कुनै आक्रामकता छ
1:49:16 –
(someone answers “yes” by doing a sign with his head meaning “no” in the european culture, and “yes” in the nepalese culture, and it is very difficult to get used to this…)
(break for 10 minutes)


Part 2 of 2 – 2 को भाग 2  (1hxx’xx”)

(to come soon)

(click the links to listen in the desired language)
(इच्छित भाषामा सुन्न लिंकमा क्लिक गर्नुहोस्)

Posted in - In english -, - नेपाली -, Autistic testimonies and thoughts, Talks

[fr] [en] [np] [ru] [ar] [es] [pt] Short point of view about autism, as of 2nd may 2016 (by Eric LUCAS)

  (former flag of Autistan)

Here is a “Short point of view about autism, as of 2nd may 2016” written by Eric LUCAS before a meeting with parents in Kathmandu.
The original is in french [fr].
Then follows a translation in english [en] ;
and machine-translations in :
nepalese [np] ;
russian [ru] ;
arabic [ar] ;
spanish [es] ;
and portuguese [pt].


[fr]

“Bref point de vue à propos de l’autisme, au 2 mai 2016”

Ce qu’on appelle autisme est la caractéristique des êtres humains suffisamment résistants pour, dès le début de la vie, ne pas être influencés par l’artificialité et l’absurdité de la société actuelle.
Ils conservent leur potentiel intact, notamment au niveau neurologique, ce qui leur permet de garder une grande sensibilité naturelle, et les qualités originelles (à la naissance) de tout être humain (candeur, sincérité, bonté…) sans qu’elles ne soient déformées, dénaturées et perverties par l’environnement social et ses conventions débiles.
Ils ne sont évidemment pas intéressés par l’absurdité et les préoccupations de la société actuelle, artificielle et “perdue”, et d’autre part ils sentent que plus ils sont en contact avec elle, plus ils vont perdre leur authenticité et leur intégrité, en étant “pollués” et “corrompus”, ce qui est contraire à leur essence. C’est pour cela qu’il n’y a pas de désir d’aller vers les autres, et qu’il existe des blocages dans la communication, qui sont en fait des “auto-protections”.
Lorsque l’autiste communique tout de même avec cette société, c’est dans un mode “émulation” ou “simulation” de personne “normale”, mais en conservant de toute façon leur propre référentiel personnel, ce qui explique les malentendus et inadaptations.
Nous sommes agressés en permanence par toutes sortes d’atteintes, que nous ressentons via le système neurologique (par les sens et par le cerveau). Ces atteintes viennent principalement de la société.
Nous sommes alors irrités, mais pas la société puisque pour elle les absurdités et incohérences sont “normales”. L’irritation et l’incommunicabilité, l’impossibilité de trouver des solutions et un soulagement nous font fatalement, tôt ou tard, entrer en “crise de nerfs”, et c’est à ce moment que les autres se rendent compte qu’il y a un problème. Comme ils ne voient pas les problèmes que nous subissons, ils pensent que le problème est interne à nous, et ils appellent ça “troubles”.
Au lieu d’apporter des solutions et aménagements aux choses qui nous font souffrir, et qu’ils refusent de voir car ils sont formatés par le système normalitaire majoritaire, ils portent leur attention sur nous en voulant nous “soigner”, et nous subissons toutes sortes d’injustices et de traitements aberrant (comme l’hospitalisation forcée, les médicaments), sans parler des moqueries et de l’exploitation.
Ceci nous rend alors tristes, déprimés, aigris, désespérés, parfois suicidaires, et encore plus irritables et frustrés au fil des années.

Etant donné que les médecins, qui sont obligatoirement formatés pour être médecins, ne comprennent rien à tout ça, ils nous voient comme des personnes “ayant un problème psychologique”. Et puisqu’ils nous prennent pour des malades, et se croient supérieurs et autorisés à s’occuper de nous, alors ils ne sont pas gênés par le fait qu’ils ne nous comprennent pas, et au lieu de se remettre en question et de s’interroger sur leur incapacité de comprendre, ils se bornent à penser que s’ils ne nous comprennent pas c’est tout simplement parce que nous avons “un problème dans la tête”, que dans le meilleur des cas ils appellent “autisme”.


[en]

“Short point of view about autism, as of 2nd may 2016”

What is called “autism” is the characteristic of the human beings strong enough to be, from the beginning of life, not influenced by the artificiality and nonsense of the current society.
They keep their potential unspoiled, especially at the neurological level, which allows them to keep a naturally high sensitivity, and the original qualities of every human being at the beginning of his life (innocence, sincerity, kindness …) without being distorted and perverted by the social environment and its stupid conventions.
They are, of course, not interested in the nonsense and concerns of today’s society, which is artificial and “lost”. And, secondly, they feel that the more they will be in contact with it, the more they will lose their authenticity and integrity, being “polluted” and “corrupt”, which is contrary to their essence.
That is why there is no desire to reach out to others, and that is why there are blockings in the communication, which are in fact a kind of “self-protection”.
When an autistic still communicates with this society, it is in an “emulation” mode, or “simulation of a normal person”, but keeping anyway their own personal referential and thought system, which explains misunderstandings and unsuitability.
We are constantly assaulted by all sorts of aggressions, that we feel through the neurological system (with the senses and the brain). These aggressions are coming almost always, from the others, from a society victim of its own system.
Consequently, we will be irritated, but not the other people, since, for them, the nonsense and inconsistencies are “normal” and since they are less sensitive, due to their formatting and their limitations, which makes that they don’t see anything of what we are seeing and which is aggressing us.
The irritation and the inability to communicate, to find solutions and a relief will inevitably, sooner or later, generate a nervous breakdown, and it is only at this time that the others will realize that there is a problem.
Given that they do not see the problems that we face, they think that the problem is internal to us, and they call it “troubles”.
Instead of providing solutions and accommodations to the things that make us suffer, and that they refuse to see because they are formatted by the “normalitaristic” majority system, they want to “cure” us, and then we suffer all kinds of injustices and nonsense treatments (such as forced hospitalization, medicines), not to mention, otherwise, bullying, exploitation, segregation, etc.
Then this makes us sad, depressed, embittered, desperate, sometimes suicidal, and more irritable and frustrated over the years.
Given that the doctors, who are formatted by the system to be doctors, do not understand anything in all that (apart from some rare exceptions), they see us as persons “having a psychological problem.”
And given that they see us as “sick”, and they consider themselves superior and allowed to take care of us, then they are not bothered by the fact that they do not understand us, and instead of questioning themselves and their inability to understand, they just think that they if do not understand us it’s simply because we have “a problem in the head”, which, in the best case, they call “autism”.


[np]

“Autism बारेमा दृश्य को कम बिन्दु, 2nd मई 2016 को रूपमा”

के भनिन्छ “Autism” जीवन को सुरुदेखि, वर्तमान समाज को बनावट बात प्रभावित छैन, हुन पर्याप्त बलियो मानव जगतले को विशेषता छ।
तिनीहरू बिना आफ्नो जीवन (निर्दोष, निष्कपटता, दया …) को सुरुमा हरेक मानव को मूल गुणहरू विकृत भइरहेको विशेष गरी, जुन उनलाई एक स्वाभाविक उच्च संवेदनशीलता राख्न अनुमति दिन्छ को स्नायविक स्तर, मा, आफ्नो क्षमता unspoiled राख्न र र सामाजिक वातावरण र यसको मूर्ख सम्मेलन द्वारा पतित।
उनि अर्थहीन र कृत्रिम र “हराएको” छ आजको समाज, को चिन्ता रुचि छैन, हो बिल्कुल। र, दोश्रो, तिनीहरूले थप संग उनि सम्पर्क हुनेछ भन्ने महसुस तिनीहरूले सार विपरीत छ जो उनको प्रामाणिकता र निष्ठा, “प्रदूषित” र “भ्रष्ट” जा रहेको छ, गुमाउनु हुनेछ अधिक।
भन्ने अरूलाई अघि बढ्न कुनै इच्छा छ, र त्यहाँ जो वास्तवमा “आत्म-सुरक्षा” को एक प्रकारको हो संचार मा blockings, किन हो किन छ।
एक autistic अझै पनि यो समाज संग संचार, यो एक “अनुकरण” मोड मा छ, वा “सामान्य व्यक्तिको सिमुलेशन”, तर जे भए पनि आफ्नै व्यक्तिगत referential र विचार प्रणाली, गलत अर्थ र unsuitability बताउँछन् जो राखन।
हामी निरन्तर हामी स्नायविक सिस्टम मार्फत (होश र मस्तिष्क संग) महसुस भनेर आक्रामकता को सबै प्रकार, द्वारा assaulted छन्। यी आक्रामकता यसको आफ्नै सिस्टम को एक समाज सिकार देखि, अरु देखि, लगभग सधैं आउँदैछन्।
फलस्वरूप, हामी रिसले हुनेछ, तर अन्य मानिसहरू, पछि, तिनीहरूलाई लागि, बात र inconsistencies “सामान्य” छन् र तिनीहरूले कारण तिनीहरूले केहि देख्नुहुन्न कि बनाउँछ जो आफ्नो ढाँचा र आफ्नो सीमितता, गर्न, कम संवेदनशील भएकोले हामी देखेर र जो छन् के हामीलाई aggressing छ।
यो जलन र नसक्नुको समाधान खोज्न, कुराकानी गर्न र एक राहत अनिवार्य, ढिलो होस् वा चाँडो, एक स्नायु बिरामी उत्पन्न हुनेछ, र यो मात्र अरूलाई एउटा समस्या छ भन्ने महसुस हुनेछ कि यस समय छ।
तिनीहरूले हामीले सामना समस्याहरूलाई हेर्न छैन भनेर दिएको, तिनीहरूले समस्या हामीलाई आन्तरिक छ भन्ठान्छन् र तिनीहरूले “समस्याहरूको” कल।
बरु किनभने तिनीहरूले “normalitaristic” बहुमत प्रणाली द्वारा ढाँचामा छन् हेर्न इन्कार भनेर हामीलाई दुःख, र कुराहरू समाधान र आवास प्रदान, तिनीहरूले चाहनु “उपचार” हामीलाई, र त्यसपछि हामी अन्याय र अर्थहीन सबै प्रकारका दुःख उपचार उल्लेख छैन, अन्यथा, बदमासी, शोषण, अलगाव, आदि (जस्तै बाध्य hospitalization, औषधीको रूपमा)
त्यसपछि यो हामीलाई वर्षौंदेखि दुःखी, निराश, embittered, लागिपरेको, कहिलेकाहीं आत्महत्या, र थप पिन्चे र निराश बनाउँछ।
प्रणाली द्वारा ढाँचामा छन् जो डाक्टर, डाक्टर हुन कि (केही दुर्लभ अपवाद अलग्गै) सबै कि केही बुझिन, तिनीहरूले व्यक्ति हामीलाई हेर्न दिइएको “एक मनोवैज्ञानिक समस्या भएको।”
र तिनीहरू उच्च र हामीलाई हेरचाह गर्न अनुमति विचार तिनीहरूले हामीलाई “बिरामी” रूपमा हेर्न भनेर दिइएको र, त्यसपछि तिनीहरूले, र सट्टा बुझ्न आफू र आफ्नो नसक्नुको सोधपुछ को बुझ्न छैन भन्ने तथ्यलाई द्वारा पाऱ्यो छैन, तिनीहरू केवल तिनीहरूले भने हामीलाई बुझ्न छैन हामी जो, उत्कृष्ट मामला मा, तिनीहरूले “Autism” कल, “टाउको मा एक समस्या” छ किनभने यो केवल भन्ने लाग्छ।


[ru]

“Короткая точка зрения об аутизме, по состоянию на 2 мая 2016 года”

Что называется “аутизм” является характеристикой человека достаточно силен, чтобы быть, с самого начала жизни, а не под влиянием искусственность и бессмыслицей нынешнего общества.
Они сохраняют свой потенциал нетронутым, особенно на неврологическом уровне, что позволяет им сохранять высокую чувствительность, естественно, и первоначальные качества каждого человека в начале своей жизни (невинность, искренность, доброта …), не будучи искаженным и извращено социальной среды и ее тупых конвенций.
Они, конечно, не заинтересованы в глупости и забот современного общества, которое является искусственным и «проигравшие». И, во-вторых, они считают, что чем больше они будут находиться в контакте с ним, тем больше они теряют свою подлинность и целостность, будучи “загрязненная” и “коррумпированной”, что противоречит их сущности.
Поэтому нет никакого желания обратиться к другим, и именно поэтому есть блокировок в сообщении, которые на самом деле своего рода “самозащиты”.
Когда аутист до сих пор общается с этим обществом, он находится в режиме “эмуляции”, или “моделирование нормального человека”, но в любом случае держать свои личные ссылочную и мысли систему, которая объясняет недопонимания и непригодность.
Мы постоянно нападению со стороны всякого рода агрессии, которые мы считаем через неврологическую систему (с чувствами и мозгом). Эти акты агрессии приходят почти всегда, от других, от общества, жертвой своей собственной системы.
Следовательно, мы будем раздражаться, но не другие люди, так как для них нонсенс и несогласованности являются “нормальными” и так как они менее чувствительны, из-за их форматирования и их ограничений, что делает, что они не видят ничего от того, что мы видим, и который aggressing нас.
Раздражение и неспособность общаться, находить решения и облегчение неизбежно, рано или поздно, генерировать нервный срыв, и только в это время, что другие поймут, что есть проблема.
Учитывая, что они не видят проблем, с которыми мы сталкиваемся, они думают, что проблема является внутренним для нас, и они называют это “неприятности”.
Вместо того чтобы обеспечить решения и жилые помещения, к вещам, которые заставляют нас страдать, и что они не хотят видеть, потому что они отформатированы в “normalitaristic” мажоритарной системы, они хотят, чтобы “вылечить” нас, а потом мы страдаем все виды несправедливости и нонсенс процедуры (например, принудительной госпитализации, лекарства), не говоря уже, в противном случае, издевательства, эксплуатации, сегрегации и т.д.
Тогда это делает нас грустными, подавленными, озлобленные, отчаянные, иногда самоубийству, и более раздражительным и разочарование на протяжении многих лет.
Учитывая, что врачи, которые отформатированы в системе, чтобы быть врачи, ничего во всем, что (за исключением некоторых редких исключений) не понимают, что они видят в нас людей “, имеющих психологические проблемы.”
И учитывая, что они видят нас как “больной”, и они считают себя выше и разрешили заботиться о нас, то они не беспокоил тот факт, что они не понимают нас, и вместо того, чтобы подвергать сомнению себя и свою неспособность понять, они просто думают, что они, если не понимают нас, это просто потому, что у нас есть “проблема в голове”, который, в лучшем случае, они называют “аутизм”.


[ar]

“نقطة قصيرة النظر حول مرض التوحد، وذلك اعتبارا من 2 مايو 2016”

ما يسمى ب “التوحد” هو سمة من سمات البشر قوية بما يكفي لتكون من بداية الحياة، لا يتأثر التصنع وهراء من المجتمع الحالي.
أنها تبقي إمكانات لم تفسد، وخاصة على مستوى الجهاز العصبي، مما يسمح لهم للحفاظ على حساسية عالية بشكل طبيعي، والصفات الأصلية من كل إنسان في بداية حياته (البراءة والصدق واللطف …) دون تشويه و منحرفة من البيئة الاجتماعية واتفاقياتها غبية.
هم، بطبيعة الحال، ليست مهتمة في هراء واهتمامات المجتمع اليوم، والذي هو اصطناعية و”فقدت”. وثانيا، أنهم يشعرون بأن بقدر ما سوف تكون على اتصال معها، بقدر ما سوف تفقد صحتها وسلامتها، بأنها “ملوثة” و “الفاسدة”، وهو ما يتعارض مع جوهرها.
هذا هو السبب في عدم وجود الرغبة في الوصول إلى الآخرين، وهذا هو السبب في أن هناك اغلاق الطرق في الاتصالات، والتي هي في الواقع نوع من “الحماية الذاتية”.
عندما يكون التوحد لا يزال يتواصل مع هذا المجتمع، بل هو في وضع “محاكاة”، أو “محاكاة لشخص عادي”، ولكن الحفاظ على أي حال الخاص المرجعية الشخصية والفكر نظامهم، وهو ما يفسر سوء الفهم وعدم ملاءمة.
نحن اعتداء باستمرار من قبل جميع أنواع الاعتداءات، التي نرى من خلال الجهاز العصبي (مع الحواس والدماغ). هذه الاعتداءات تأتي دائما تقريبا، من الآخرين، من ضحية مجتمع نظامها الخاص.
ونتيجة لذلك، فإننا سوف يكون غضب، ولكن ليس أشخاص آخرين، منذ ذلك الحين، بالنسبة لهم، وهراء والتناقضات و”طبيعية” ونظرا لأنها أقل حساسية، نظرا لتنسيقها وحدودها، الأمر الذي يجعل ذلك أنهم لا يرون أي شيء ما نشهده والذي تعتدي علينا.
تهيج وعدم القدرة على التواصل، لإيجاد الحلول والإغاثة لا محالة، عاجلا أو آجلا، وتوليد بانهيار عصبي، وأنها ليست سوى في هذا الوقت أن الآخرين سوف يدرك أن هناك مشكلة.
نظرا لأنها لا ترى المشاكل التي نواجهها، ويعتقدون أن المشكلة الداخلية لنا، ويسمونه “متاعب”.
بدلا من تقديم الحلول وأماكن الإقامة إلى الأشياء التي تجعلنا نعاني، وأنهم يرفضون أن نرى أنه تم تنسيقها من قبل نظام الأغلبية “normalitaristic”، وأنها تريد أن “علاج” لنا، وبعد ذلك نحن نعاني كل أنواع الظلم وهراء العلاج (مثل المستشفى القسري، والأدوية)، ناهيك، وإلا، البلطجة، والاستغلال، والتمييز، وما إلى ذلك
ثم وهذا يجعلنا حزين، مكتئب، المرارة، يائسة، وأحيانا الانتحار، وأكثر من تعكر المزاج والإحباط على مر السنين.
وبالنظر إلى أن الأطباء الذين تم تنسيقها من قبل النظام ليكون الأطباء، لا يفهمون أي شيء في كل ما (بغض النظر عن بعض الاستثناءات النادرة)، يروننا كأشخاص “وجود مشكلة نفسية.”
وبالنظر إلى أن يروننا “مرضى”، ويعتبرون أنفسهم أفضل ويسمح لرعاية منا، ثم أنهم لا ازعجت حقيقة أنها لا فهم لنا، وبدلا من التشكيك في أنفسهم وعدم قدرتهم على فهم، انهم فقط يعتقدون أنهم إذا لا فهم لنا انها ببساطة لأن لدينا “مشكلة في الرأس”، والتي، في أفضل الأحوال، يسمونه “التوحد”.


[es]

“Punto de entrada de vista sobre el autismo, a partir del 2 de mayo de 2016”

Lo que se llama “autismo” es la característica de los seres humanos lo suficientemente fuertes como para ser, desde el principio de la vida, no influenciada por la artificialidad y sin sentido de la sociedad actual.
Mantienen su potencial virgen, especialmente a nivel neurológico, lo que les permite mantener una alta sensibilidad natural, y las cualidades originales de cada ser humano en el comienzo de su vida (la inocencia, la sinceridad, la bondad …) sin ser distorsionadas y pervertida por el entorno social y sus convenciones estúpidos.
Ellos son, por supuesto, no está interesado en el absurdo y las preocupaciones de la sociedad actual, que es artificial y “perdido”. Y, en segundo lugar, consideran que más van a estar en contacto con él, más van a perder su autenticidad e integridad, ser “contaminado” y “corruptos”, lo cual es contrario a su esencia.
Por eso no hay ningún deseo de llegar a los demás, y que es por eso que hay bloqueos en la comunicación, que son, de hecho, una especie de “autoprotección”.
Cuando un autista todavía se comunica con esta sociedad, que está en un modo de “emulación”, o “simulación de una persona normal”, pero manteniendo todos modos su propio sistema de referencia personal y pensamiento, lo que explica los malos entendidos y falta de idoneidad.
Estamos constantemente acosada por todo tipo de agresiones, que creemos que a través del sistema neurológico (con los sentidos y el cerebro). Estas agresiones se están casi siempre, de los otros, de una víctima de la sociedad de su propio sistema.
En consecuencia, vamos a estar irritada, pero no las otras personas, ya que, para ellos, el sentido y las inconsistencias son “normales” y puesto que son menos sensibles, debido a su formato y sus limitaciones, lo que hace que no se ve nada de lo que vemos y que nos está agrediendo.
La irritación y la incapacidad para comunicarse, para encontrar soluciones y un alivio, inevitablemente, tarde o temprano, generar un ataque de nervios, y es sólo en este momento que los demás se den cuenta de que hay un problema.
Dado que no ven los problemas que enfrentamos, piensan que el problema es interno a nosotros, y lo llaman “problemas”.
En lugar de proporcionar soluciones y adaptaciones a las cosas que nos hacen sufrir, y que se niegan a ver porque están formateados por el sistema mayoritario “normalitaristic”, quieren “curar” nosotros, y luego sufrimos todo tipo de injusticias y sin sentido tratamientos (como la hospitalización forzada, medicamentos), por no hablar, de lo contrario, la intimidación, la explotación, segregación, etc.
Entonces esto nos hace triste, deprimido, amargado, desesperado, a veces suicida, y más irritable y frustrado largo de los años.
Dado que los médicos, que están formateados por el sistema para ser médicos, no entienden nada en todo lo que (aparte de algunas excepciones raras), nos ven como personas “que tienen un problema psicológico.”
Y dado que nos ven como “enfermo”, y que se consideran superiores y se permite que cuidar de nosotros, entonces ellos no se preocupan por el hecho de que no somos, y en vez de preguntarse a sí mismos y su incapacidad para comprender entienden, que sólo piensan que si no nos entienden es simplemente porque tenemos “un problema en la cabeza”, lo que, en el mejor de los casos, que ellos llaman “autismo”.


[pt]

“Ponto de curto de vista sobre o autismo, a partir de 2 de maio de 2016

O que é chamado de “autismo” é a característica dos seres humanos fortes o suficiente para ser, desde o início da vida, não influenciada pela artificialidade e do absurdo da sociedade atual.
Eles mantêm o seu potencial intocada, especialmente no nível neurológico, o que lhes permite manter um natural de alta sensibilidade, e as qualidades originais de cada ser humano no início de sua vida (inocência, sinceridade, bondade …) sem ser distorcida e pervertida pelo ambiente social e suas convenções estúpidas.
Eles são, obviamente, não está interessado em o absurdo e as preocupações da sociedade de hoje, o que é artificial e “perdido”. E, em segundo lugar, eles sentem que quanto mais eles vão estar em contato com ele, mais eles vão perder a sua autenticidade e integridade, sendo “poluída” e “corruptos”, o que é contrário à sua essência.
É por isso que não há nenhum desejo de chegar aos outros, e que é por isso que existem bloqueios na comunicação, que são na verdade uma espécie de “auto-proteção”.
Quando um autista ainda se comunica com esta sociedade, é em um modo de “emulação”, ou “simulação de uma pessoa normal”, mas mantendo mesmo assim o seu próprio sistema referencial pessoal e pensamento, o que explica mal-entendidos e inadequação.
Estamos constantemente assaltados por todos os tipos de agressões, que sentimos através do sistema neurológico (com os sentidos eo cérebro). Estas agressões estão chegando quase sempre, dos outros, de uma vítima da sociedade do seu próprio sistema.
Consequentemente, vamos estar irritado, mas não as outras pessoas, uma vez que, para eles, o absurdo e inconsistências são “normal” e uma vez que eles são menos sensíveis, devido à sua formatação e suas limitações, o que faz que eles não ver nada do que estamos vendo e que está nos agredir.
A irritação ea incapacidade de se comunicar, para encontrar soluções e um alívio, inevitavelmente, mais cedo ou mais tarde, gerar um colapso nervoso, e é somente neste momento que os outros vão perceber que há um problema.
Dado que eles não vêem os problemas que enfrentamos, eles pensam que o problema é interno para nós, e que eles chamam de “problemas”.
Em vez de fornecer soluções e acomodações para as coisas que nos fazem sofrer, e que eles se recusam a ver porque eles são formatados pelo sistema de maioria “normalitaristic”, eles querem “cura” nós, e então nós sofremos todo tipo de injustiças e disparates tratamentos (tais como a hospitalização forçada, medicamentos), para não mencionar, caso contrário, o bullying, a exploração, a segregação, etc.
Então isso nos faz triste, deprimido, amargurado, desesperado, às vezes suicida, e mais irritado e frustrado ao longo dos anos.
Dado que os médicos, que são formatados pelo sistema para ser médicos, não entendo nada em tudo o que (para além de algumas raras exceções), eles nos vêem como pessoas “ter um problema psicológico.”
E dado que eles nos vêem como “doente”, e eles se consideram superiores e autorizados a tomar conta de nós, então eles não são incomodados pelo fato de que eles não nos entendem, e em vez de questionar a si mesmos e sua incapacidade de entender, eles simplesmente pensam que, se não nos entendem é simplesmente porque nós temos “um problema na cabeça”, que, na melhor das hipóteses, eles chamam de “autismo”.

Posted in - Em português -, - En español -, - En français -, - In english -, - По-русски -, - بالعربية -, - नेपाली -, Autistic testimonies and thoughts, Interviews / other messages

[fr] Quelques réflexions sur l’autisme, à l’intention des médecins français (par Eric LUCAS)

FR
Voici un enregistrement de quelques de réflexions personnelles sur l’autisme, destiné aux médecins français.
Toute remarque de toute personne autiste ou de tout médecin ou personne concernée par l’aide aux autistes sera la bienvenue : eric.lucas@allianceautiste.org
Eric LUCAS

Il y a quelques “coupures” dans ce fichier audio (généralement signalées par des “bip”), car au départ je l’ai enregistré pour quelqu’un, sans intention de le publier.
J’ai donc dû enlever certaines parties, et parfois il manque des transitions entre différents sujets (ça “passe du coq à l’âne”).

Les personnes pour lesquelles “c’est (encore) trop long” devraient cliquer uniquement sur une ou deux parties d’une ou deux minutes, ci-dessous(Je ne sais pas comment faire plus court).

0:00:00 – Début – à propos de la définition du terme “maladie” – distinction : 1/Autisme, 2/”Troubles”, 3/Handicap – la notion “d’altération”
0:02:28 – Le pouvoir médical
0:03:17 – Autonomie, liberté, responsabilité, estime de soi
0:03:53 – Les autistes adultes non-diagnostiqués
0:04:38 – Expressions “autistes”, “personnes autistes”, “personnes avec autisme” (cette dernière étant à proscrire)
0:07:47 – Perplexité, approches – faire s’approcher l’autiste, et non pas l’approcher
0:08:34 – Prendre en compte les points de vue sur l’autisme par les autistes eux-mêmes
0:10:06 – Le “trouble” – atteintes neurologiques sensorielles et mentales (incohérence/injustice) – (résumé du processus classique de nos souffrances)
0:16:54 –  Inutilité de la psychiatrie pour comprendre les crises autistiques
0:18:18 – La communication – ne pas forcer mais donner envie – pourquoi cette “dictature” de la communication et de la “socialisation” à tout prix ?
0:19:54 – L’expression “sans déficiences intellectuelles” – d’autres formes d’intelligences – les animaux – le “normo-centrisme”
0:25:12 – Les termes “habiletés sociales” – “remédiation cognitive” – les risques d’excès (“plus royaliste que le roi”) – pourquoi pas “apprentissage social” ?
0:28:33 – Problème des tentatives “venant d’un autre monde” (celui du non-autisme) pour aider les autistes (décalage)
(lire ma présentation d’Almaty et tout devient clair)
0:34:27 – Le mot “thérapie” – le mot “rééducation” (!)
0:35:16 – Les médicaments – l’ocytocine – les risques d’effets pervers des ersatz
0:39:32 – Lien entre communication et interactions sociales (cadeau ! chapitre de seulement 15 secondes (pas “trop long”))
0:39:47 – La relativité des “intérêts restreints”
0:41:19 – Le droit à un “refuge”
0:45:30 – Le travail
0:47:17 – Le sport et les activités corporelles
0:48:25 – Les “intérêts restreints” (bis) – (à renommer par exemple “intérêts particuliers”)
(expression “autiste de haut niveau” : à proscrire) –
0:52:55 – Il faut une prise en compte générale de l’autisme pour tous les autistes, y-compris ceux qui ignorent qu’ils le sont
0:54:01 – Le logement et le cadre de vie – liberté et autonomie
0:55:44 – Réflexion très “différente” sur la santé des autistes – la santé mentale (notamment psychologique) des autistes, *indépendamment* de l’autisme (difficile à résumer par écrit)

Posted in - En français -, Autistic testimonies and thoughts, Interviews / other messages Tagged with:

[en] Meeting about autism with parents and teachers in Dubai (with Eric LUCAS)

AE


Warning by Eric :

This meeting has been a little bit “chaotic” (but very interesting) and my speech abilities are sometimes “impaired” (many little hesitations (stammering / stuttering) and confusions and little english errors etc., especially at the end) because, in the morning, I experienced what I call a “neurological aggression”, due to a “non-autistic street address” (of an office).
(If you want to know more, please read at the bottom of this page, in blue.)
– All this has nothing to see with the local organisation related to autism, who is helping for these meetings, and who is really “good”, in my opinion.
– The center who hosted the meeting did their best and were very kind and helpful too, and solved quickly the little difficulties that I encountered because my higher-than-usual level of sensitivity.

On the other hand, given that my neurological system was not completely calmed down (although I slept before the meeting), this allowed to make some real-time experiences during the meeting (and most of them were related to “doors”).


Part 1 :

(In a public center for persons with Special Needs in Dubai)
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In this first part, lasting about 6 mn, there is a beginning of presentation, but it was difficult to continue because it was in a large corridor (like a hall) with some space (nicely) arranged for the occasion, but, in short, without “protection” and with too many risks of “distractions”.
Anyway it is interesting to listen to this “beginning”, to understand better the rest of the meeting, because this real-time experience of autistic special needs is mentioned or used several times during the talks.

(backup link, in case of problem with the player above)

Part 2 :

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(click the links to listen)

0:00:00 – Beginning – explanation about the “not-a-real-room” and “lack of door” problem in the first part
0:03:02 – Self-presentation – “revelation” thanks to the discovery of “Asperger syndrome” – the misunderstandings
0:05:58 – Idea of creating an association – very short mention of the situation in France
0:06:47 – Huge misunderstanding between “autism” and the “normal” society – “autism-seen-as-a-disease” –  the biological difference – “the law of the most numerous” – fright – when you can’t understand someone… – there is always a reason for the autistic behaviours
0:10:28 – This reason is always a “neurological aggression” (sensory or mental)
(exactly at this moment, occured in the room an very little example of “neurological mental aggression”, with the “door not completely closed”)
0:12:13 – The 2 types of “neurological aggressions” : sensory, and mental – a few mentions about the links between both – the *inconsistencies* and incoherences and non-natural variations – the *order* – very very high sensitivity
0:17:23 – This hypersensitivity to details and variations can be a quality, for a job for example – talents – Isreali army using Asperger persons to spot non-natural details on satellite pictures
0:18:02 – The autistic nature = nature and harmony – autistic mind in the nature : no conflicts – non-sense of society – autistic “logical, pure mind”
0:22:36 – Always reasons for “strange gestures” (flapping etc.)
0:23:15 – Explanation of the progress of autistic problems : very little details (that no one else sees or feels) –> neurological aggression –> irritation –> accumulation of irritations over the time (plus various mental aggressions due to the primary aggression) –> difficult to explain or express (and frustration linked to that) (many times the irritations come from the others – example of the little problem of the morning – sun and shadow and social obligations) (when society think there is no problem, they just say “there is no problem”) (boiling water or milk) (problems to express oneself when one is irritated – risks of fast escalation) –> even when you can explain, sometimes they don’t believe you –> even if they believe, generally the people who could stop or reduce the aggression don’t want to do it, or are not authorized to do it, because of the “power of normality” (“it’s like that, you have to do like everyone”)
0:37:17 – Autistics cannot accept injustice – because the “resistance to (social) non-sense” is part of the essence of autism – things are decided by majority, not taking autism into account : “sorry, you have suffer”
0:38:11 – The adaptations from society (“reasonable accomodations”) could be easy to do (or at least not expensive) – example of the “not requested or not appropriate attention or care” (beware : this does not mean “don’t propose help” ; it means “make this help available, so the person can chose it or not) – many times, the biggest need of the autsitic is to be quiet or alone in his thought – like when you sleep
QUESTIONS :
0:41:56 – “You discovered your “Asperger syndrome” 3 years ago, but what about before, did you have problems ? (Why didn’t you discover it earlier ?… (this conclusion of the question was not understood by Eric, who was “blocked” on the first part of the question)).” – problems since the beginning – at school etc. – my speech problems : I speak too much (explanations about my 5-hours long “message about the year 2015”) – autistic problems at work – problems at home (each time not alone) – when you know the mechanism of your autism, less problems – complicated (not straight-forward) social communication codes – assumptions about “intentions” – example of a double-misunderstanding (or double “mistaken identity”)
0:51:00 – “How did you discover ? (Asperger)” – the “difference” – “you have +something+” – a “sheep with 5 legs” – the movie “My name is Khan” – the revelation (fixing problems – the sincerity – the *yellow color*) – verifications (Aspiequiz on RDOS.NET (168/200 points), then  official diagnostic) –  “first time I see something +made for me+” – problems with forms, with cases (like “tourism” or “work”)
1:03:29 – “What is your Asperger giftedness ?” – difference between “Asperger” and “high functioning” – impossible to find proper definitions as long as autism is seen as a disease – talents and intelligence “above normal” – stereotypes – maths – yes there are special talents – “in my case I don’t know – maybe with my jacket – (maybe about the possibility to understand and make bridges with people, but Eric forgot to mention this)” – find talents of any autistic (even not Asperger, non-speaking etc.) – help the children to find their special talents, don’t block their “narrow interests” – the special jacket
1:12:44 – (preparing to take a break, back in the first place (the large corridor or hall))

Part 3 :

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(click the links to listen)

0:00:00 – “Haven’t you seen psychologists before your diagnostic 3 years ago ?” – official diagnostics after – and before, plenty of doctors but they did not understand – confusion with schizoprenia
0:01:46 – (Question about “Eric LUCAS” teacher in the USA (about autism)… (probably someone with the same name or a similar name ?))
0:02:30 – “When or where are you the more subject to the +aggressions+ or autistic problems ?” – it is when there is an inconsistency – but it is worse in the evening, when tired – and with the heat also
0:04:11 – “My son has sensitivity to the sounds…” – (there was a huge storm last wednesday) – with some music also – about crying easily (once again, example about the address problem of this morning – feeling like “stranded”, desperate, almost close to be crying – found a place to rest for a while) – rap music (very irritating and “blocking”)
0:11:29 – “So do you think that we don’t have to disturb them ? Allow them to do whatever they want ?” – “in a perfect world”, yes, the autistic need the right to be in peace – importance of the “refuges” – the more important is the thought for the autistics – another kind of life experience – hermits – purity of the life far from nonsense of (westerner) social system – but it is important to help to learn methods to live with people, to be more autonomous – the best is to do both : learn tools for when autistics want to go in society, but without being forced (no justification) – if we feel anything anything not fair, our mind will block – the solution is : make the “normal things” (or family etc) interesting for the autistic – ABA – the very high importance of justifications for the autistics
(it is also important to find and develop the autistic qualities and talents, but this has been forgotten in the answer)
0:19:41 – “How to explain my son that some behaviours not acceptable ?” – he gets more angry – no problem at school with rules – problems at home, no contact – maybe it’s like vacation for him at home – being alone – people telling “you are not a good mother” – the dictatorship of the judgement of people who don’t know – problems for the mother – if you force him, anyway problem because feeling injustice – it is better to find ways to interest him – emotions and feelings (example of a boy making a whole sentence) – crying too much – don’t tell the kid to stop crying – maybe too much kind at some times, and then doing things without the “justifications” at other times – need for rules, softwares, timers, devices – the device would command the negative decision, not the mother – their should be a rule, it should look fair, or at least usual, without bad surprises – for each forbidden thing, allow something good – the motivations – the idea of the “refuge room *only* for the autistic kid” with the door with 8 different locks and color keys, plus an electrical lock with a clock, without any danger in the room, and with possibility to lock from inside
0:48:58 – “My son – about echolalia – speech – do we have to disturb him ?” – maybe he needs to do it, then don’t disturb – don’t break, interrupt, but change the behaviour slowly to something else, without aggression, injustice – never anything brutal
0:54:09 – “About the +methods+” – ABA – problem with forcing the child to do something, without any respect to his autistic qualities – it is important to teach how to do basic social things, and not do unacceptable things, but it is also important to find and cultivate the autistic specialties (and to accept them, of course)
0:56:58 – “My son is using internet for cartoons, and playstation for violent things…”(here are discussions about possible reasons – physical action) – help to cultivate the special abilities, and respect them
1:03:55 – Back to the question about the “methods” – doctors – Eric’s bad experience in a special center at the age of 6 and 7 (rather detailed description) – learning how to hate living in group – worse than normal school – very important to be *accepted* in the free world — better to allow your child to go to normal school, with special assistants – in the special centers he just has to follow things, without discovery, without developing responsablity – there should be also assistants at home
1:16:06 – “Didn’t you think about writing a book about your life ?” – yes, for now 8 books are planned, and now writing one about autism, and a second with invented words – the third planned is about the 15 months in medical detention — (goodbye)
(Link to the “Almaty autism speech“)


Note :
The word *hospitality* in the United Arab Emirates (see the pictures) has a different meaning than in France, where it means forced detention, in *hospitals* (and “centers”), for the autistics and other persons with different needs, with thousands spending all their (non-)life like that, to satisfy the medico-financial lobbies, covered by public authorities “unabled” to do the necessary (or “disabled public services”).

DSC_0838 1


Very short description of the “non-autistic street address” problem (and other minor “Non-Autistic Troubles”) experienced in the morning, by Eric :

(Please not that all these little problems are not due to the country (the UAE), which is very serious, and appreciated by me, but to foreign people and companies.)

In order to solve an administrative problem (not related to this country, but to another one, with a visa service), I had to waste hours trying to find an office in the city, with a very “non-autistic adress” : no street name, no number, but only “relative” informations, like names of buildings (not appearing anywhere on the buildings, and not known by people in the area), and such things, which forced me to ask information to people, who were of course telling me their “beliefs”, which were very different (everyone having his own opinion about where this place could be…).
On top of that, I had to search by foot, under the sun, after the taxi dropped to the first place (that I naively believed was the “address”, given that I showed him the 4 lines describing it…).
After some time walking and searching and asking, I started to make pictures and even voice recordings, which will allow to analyse this situation later, when I (or someone willing to assist) will have the time.
This is a very typical “Non-Autistic Trouble” that we have to live all the time.
It is not so terrible, and not the first time, but it is the addition of such things, all the day, weeks, years, which makes “damages”.
In conclusion I lost 3 hours, to get an answer (in short : “we cannot process your visa request”) that I could have got with their site if it was written correctly, or by email if they answered, or by phone if it was not permanently busy…
But, sorry, I am autistic… I have to adapt to people who do not even know their address (etc.).
One of the good things in the experience, is that instead of “suffering alone under the sun”, as soon as I started to make pictures and audio recording of my “quest” wanderings in the blocks (which lasted 1h 15 !), I was much less irritated, because I knew I could share later, to explain this kind of problems but also to get confirmation (or explanations ?) about who is to blame, what else I could have done etc. (given that the taxis are useless to find a place, and that I hard a hard time with the “Google Maps” service on my phone, with the 4 lines of the given “address”, not to mention that I first arrived to another office of the same company, which was not the correct one (thanks to “social communications”…), where they gave me again the “address” but with different words (more useful, btw.).

Just after this “non-autistic address issue”, I had another little story in the post office : given that (apparently) there is no mailbox where I could throw the letter, I had, once again, to *ask someone* working in the post office (i.e. to use the social, relative resources) : I showed him my postcard, asking where to put it, but you know that because *I* have “autistic communication problems”, then the others do not listen to me, so at first he believed that I wanted to go to the place on the postcard ! Then I showed him the address and the *stamp* to show that the card was ready to send, and he believed that I was looking for stamps ! A possible explanation to this, could be that “everyone knows” where the maibox is (therefore, my question would be too much unusual), but no : someone finally told me to go to “counter 4”. I know I am “autistic” and I make efforts to be adapted, but attempting to send a postcard in a post-office is not something so much “crazy” and weird bla bla bla…

While writing this text I had to go to close correctly a banging door many times with the wind, despite the fact that the people living in the rooms (foreign “backpackers”) have seen my problem with this door, but of course given that they are not annoyed by this noise, it is “my problem”.

And the worst of all is that, a few hours ago, I attempted to sleep (in the afternoon), but I was woken with a start (like bursting) because the cleaner slightly touched my foot when cleaning the floor (I think I was just starting to be asleep). It was terrible and I shouted immediately and “jumped” out of the bed.
So, don’t tell me that autism is “psychologic” or “psychiatric” : I was *sleeping* and I reacted (strongly) one second after the “sensory aggression” (I did not even have the time to analyze or to think to previous similar things (this tought would have created a “mental aggression” because of memories of related social problems)).

Posted in - In english -, Autistic testimonies and thoughts, Talks Tagged with: ,

[en] Meeting about autism in Abu Dhabi (UAE) with Eric LUCAS

AE
Here is a recording of some questions by parents and carers of autistics, and answers by Eric LUCAS (autistic self-advocate) in Abu Dhabi (United Arab Emirates).

0:00:00 – “Can you you give us general information about you ?” – “high functioning autism” – (example of distraction)
0:02:50 – Autistic Association in France – the autistics should not live in centers, and should go to schools instead of centers
0:05:55 – First, explain autism, to avoid making things not adapted – attention or care, if not requested, is unwanted – the autistics are not people who follow – things have to come first from the autistic thought – the autistics should see the reasons, otherwise they are not motivated – automatic protection against anything seen as “stranger”
0:09:51 – The non-autistics also are automatically rejecting “the unknown”
0:11:00 – Collaboration attempts between autistic self-advocates
0:12:38 – Russia in november 2015 : presentation about overcoming challenges    [link to the article]
0:13:42 – Kazakhstan : Almaty autism conference  [link to the article]
0:14:06 – How Eric arrived here
0:15:59 – “How / where to start with autism (how to develop adaptations…)” : How Eric would do in order to “reach” a low-communicating autistic person – same level – surroundings – be approached, not approaching – flapping – be friendly – our reasons – difference is complementary – also try to invite him to an interesting world – nature or empty flat, without anything “scratching the attention” (against harmony) – avoid the distracting things (otherwise it’s very difficult to “connect”)
0:40:32 – (little distraction during the meeting : new participant arriving – explanations about concentration, imagination, “being lost your thoughts”, the yellow color and the “sensory agressive little details”)
(while I was writing these words, I heard the word “yellow” in a conversation right behind me (in spite of my anti-noise helmet), and when I started this paragraph (when writing “0:40:32”) I thought that it was a strange “coincidence” that someone brought a distraction in the meeting, right when I was talking about this subject) (and I had a similar situation in a meeting in Russia, again when I spoke about unwanted and unplanned annoyances : I was saying “like…” (looking for an example) and, less than one second later, there was a big bell noise, so I just had to say “this !” – it was totally “in time”, like at the opera)
0:47:19 – “For my 4 years-old non-speaking autistic grand-son, would it be better to start with a regular school, or with a center ?” – the need to be in “normal” places – but with protections and adaptations – no segregation – “teach non-autism tricks” in the normal places, why not with the staff usually working in special centers – stigmatization because putting us all the time in special – my example of a 2 years in special center
1:01:03 – “What do you think about the problem of ‘lack of eye-contact’ ; how to deal with that ?” – there are several reasons – (some thoughts about imagination) – impossible to follow the thoughts – vulnerability –
(at 1:08:51 : Error : It is said “they can do all what they do”, but in fact it is “they can do all what they want“)
– problem of the command without explaining why – (problems with job interview) – mental agression, inconsistency, injustice – concern of parents about eye-contact – attentions conflict – a probable reason of the necessity of eye-contact for non-autistic persons (to detect lies) – usually when “normal” people want to do bad things they have to avoid eye-contact for their protection – for us, it’s the opposite, we avoid eye-contact to protect our “good things” – need of justification, especially for things conflicting with our autism
1:27:27 – Difficult to explain things too much abstract – problems with symbolic things – symbolic is artificial – the autistic aree closer to natural things – the language is abstract – in the past (communication by thought) – the animals – original / natural / autism – sophisticated language is one of the reasons of the actual problems (theories with errors, confusions little by little, manipulations of concept) – also problem with sophisticated creation with the hands – Hiroshima (made by “concepts” – big non-nonsense)
(at 1:36:09 : Error : “three thousand thousand people” : no, it is  “three hundred thousand”)
1:36:22 – About an example of autistic “dispersion problem” (too many brackets and explanations, like hyper-links) – Einstein
1:37:28 – Eric’s special diet (nuts, walnuts, almonds, cashew, tomatoes, carrots, apples, bananas, honey, tunfish, water) (+ sometimes goji, strawberries, avocado, mango juice or other natural things), all without any modification (like cooking) – gluten – milk – don’t modify : you can’t do better (healthier) than the orignal natural things
1:46:46 – “How to know if a very young child is autistic ?” – some usual criteria – the “not playing with others” non-problem (my experience) – the game is abstract – our mind / concrete / Autistan – competition (relation with others), domination… no point
1:56:07 – “What about putting fingers in mouth ?” – biting fingers / finger-eating : Eric’s method to solve this problem – flapping, autistic hand shaking
2:03:51 – End

Posted in - In english -, Autistic testimonies and thoughts, Talks Tagged with: , ,

[en][ru] Conference in Almaty (Kazakhstan) with Eric LUCAS – Конференция в Алматы (Казахстан) с Эрика Лукаса – “Almaty autism speech”

KZ
Для русского языка, прокрутите вниз


On the 12th february 2016 has been organized a conference about autism, in Almaty (Kazakhstan), by a local organization of parents of autistics (Pioneer / Ashyk Alem), especially by a mother (Janna) of an autistic boy (Alibek).

Here are the various documents available :



TABLE OF CONTENTS for the 1st part :     (direct links to the recording will be added later)
0000/ About the mask
000/ Quick presentation about me and my presence in Kazakhstan
00/ Introduction
0/ Indispensable preliminary distinctions
0-1/ Autism
0-2/ Troubles Associated With Autism
– “Autistic Behaviours Perceived As Troubles”
– “Problematic Autistic Behaviours Resulting from Social Agressions”
– “Harmful Autistic Behaviours”
– “Diseases Associated With Autism”
0-3/ The Handicap
A/ Non-Autism and Non-Autistic Troubles
The Truth-Transformation Trouble
The Artificial Relativist Referential
The Normalitaristic Trouble (or Trouble of Normocentrism)
The Comfortabilistic Trouble
The “Rule of the Strongest Because Most Numerous”.
The Non-Autistic Communication Troubles
B/ Almost all the major beliefs and descriptions about autism are wrong, not correct, or very debatable
The “disease”
“The symptoms are appearing near the age of 3 years”
The neurons
The “disorder”
“It comes from the mother”
The social interactions problem
The communication problem
The “narrow interests”
The “psycho-rigidity”


TABLE OF CONTENTS for the 2nd part :     (direct links to the recording will be added later)
C/ My vision of the deep nature of autism, and of the mechanisms of its’ relations with the world
The Whole
The material world
The “Intelligent Energy of Life”
The living bodies
The individual life
The variability of the physical/spiritual mix
The “less physical beings”
The location of the attention or the consciousness or the “me”
The neurological interface
The hypersensitivity
The neurological irritations
The distance
The Essential Characteristics of Autism (or “the keys”)
D/ The autistic life experience and usefulness
The own path of life
The qualities
The “above normal” abilities
About the genetic tests and the abortion
E/ The current suffering and the so-called “troubles” of the autistics, oppressed by a majority of people whose non-autistic formatting prevents them to guess how to understand us, and whose illusion and artificial values prevents them to see our positive sides
The aggressions
The nervous reactions resulting from the irritation
The resulting crises, stress, anger, depression, distress and psychological problems
The impossibility to adapt to all that, and the right to refuse to try
F/ What should be done to improve the situation of autistics in general
De-normalitarization
Awareness, understanding
Education
Stop hurting, stop the medical dictatorship
Respect
Protection
Accommodations
Work and creativity
Right place in society
Help us to be daring and autonomous
Opportunities
Conclusion



  • The audio recording of some discussions before the event  (to release soon)

  • A press article (in russian)
    Please note : there are many misunderstandings in this article :
    Eric has never talked about
    – a risk of irritation or problem if someone smiles (!…)
    – “Africa” but “indigenous South American tribes”
    – “the Lord” (or whatever similar)
    – the brain hemispheres





На 12 февраля 2016 была организована конференция об аутизме, в Алматы (Казахстан), местной организацией родителей аутистов (Pioneer / Ашык Алем),особенно матери (Janna) аутичного мальчика (Алибек)).

Здесь имеются различные документы:


– Текст Эрика Лукаса презентации (на английском языке), озаглавленный “Мои мысли о” аутизм “ (Осторожно, это очень отличается от обычных вещей об аутизме!)


– Видео-клип первой части презентации (от начала и до секции ‘B’ в комплекте), в английском переводе в России

СОДЕРЖАНИЕ для 1-й части: (прямые ссылки на записи будут добавлены позже)
0000 / О маска
000 / Быстрый презентация обо мне и моем присутствии в Казахстане
00 / Введение
0 / Необходимые предварительные различия
0-1 / Аутизм
0-2 / Проблемы связаны с аутизмом
– “Аутичные Поведение воспринимается как Смутное”
– “Проблемные Аутичные Поведение вытекающие из социальных Agressions”
– “Вредные Аутичные Поведение”
– “Заболевания, связанные с аутизмом”
0-3 / гандикап
A / Non-Аутизм и не аутичных Неприятности
Правда-Трансформация Проблема
Искусственный Релятивистская справочный
Normalitaristic Проблема (или проблемы нормальной центризма)
Комфортности Проблема
«Правило Сильнейшие Потому наиболее многочисленных”.
В не аутичных Проблемы связи
B / Почти все основные убеждения и описания об аутизме неправы, неправильно, либо очень спорным
Болезнь”
“Симптомы появляются около 3 лет”
нейроны
“Расстройство”
“Это происходит от матери”
Проблема социального взаимодействия
Проблема связи
«Узкой интересы”
“Психо-ригидность”


Клип второй части презентации (из раздела “C” до конца), в английском переводе на русском языке, только со звуком (без видео)

СОДЕРЖАНИЕ для 2-й части: (прямые ссылки на записи будут добавлены позже)
С / Мое видение глубокой природы аутизма, и механизмов его “отношений с миром
Целый
Материальный мир
“Intelligent Energy жизни”
Живые тела
Индивидуальная жизнь
Изменчивость физического / духовного смеси
«Меньше физические существа”
Расположение внимания или сознание или «я»
Неврологическое интерфейс
гиперчувствительность
Неврологические раздражения
Расстояние
Основные характеристики аутизма (или «ключи»)
Д / аутистического жизненный опыт и полезность
Собственный путь жизни
качества
В “сверх нормы” способности
О генетических тестов и аборта
E / Ток страдания и так называемые “проблемы” из аутистов, угнетенных большинством людей, чьи не аутичных форматирования предотвращает их угадать, как понять нам, и чьи иллюзии и искусственные значения мешает им увидеть наши положительные стороны
В агрессии
Нервные реакции, приводящие от раздражения
Результате кризисы, стрессы, гнев, депрессия, стресс и психологические проблемы
Невозможность адаптироваться к все, что и право на отказ, чтобы попытаться
F / Что должно быть сделано, чтобы улучшить ситуацию в целом аутистов
Де-normalitarization
Осознание, понимание
образование
Остановка боль, остановить медицинскую диктатуру
уважение
защита
Размещение
Работа и творчество
Нужное место в обществе
Помогите нам быть смелым и независимым
возможности
Вывод


  • Аудиозапись некоторых вопросов и ответов :

– 0:00:00 – “Можете ли вы рассказать нам о вашей личной собственного опыта (детство, диагностики …)”
– 0:12:28 – “О безглютеновой диете: это нужно, это обязательно” – Мой специальная диета
– 0:19:21 – “Вы можете сказать нам больше о вашей организации, и то, что сделало вы решили сделать это?”
– 0:23:26 – О международном опыте борьбы с аутизмом – путешествует – спорт
– 0:31:50 – О Pioneer горнолыжный курорт опыт
(Дополнительная, письменное заявление (не в конференции):
“Мое пребывание на горнолыжном курорте Pioneer был очень интересный и полезный опыт для меня.
Я чувствовал в уверенности, и я принял их доброе предложение, чтобы попытаться взять лыжные уроки, которые выглядели почти невозможно для меня, до сих пор.
Я обнаружил ограниченность контроля моего сознания над моим телом.
Обычно отношения между моей голове и конкретной действительности не так уж и сложно, но когда вы скользите на лыжах, дела идут очень быстро, и вы действительно должны быть очень сосредоточены на каждом новом «сюрприз» от снега (земли, реальность ) и реагировать в доли секунды, что очень трудно аутичного человека, учитывая, что, в принципе, мы не до конца оставить в нашем организме, и у нас есть особое отношение с пространством и временем.
Я должен был сделать unusal усилия внимания, чтобы суметь контролировать ситуацию и не упасть.
Я чувствовал, что когда он шел слишком быстро, я начал паниковать немного, и потерять контроль, и быть ближе к падает.
Персонал знаком об аутизме, и они были терпеливы и attentionate, и это внесло значительные изменения для меня, и дал мне мужество.
Наконец, после нескольких часов, я мог даже ездить весь склон (более 1 км), с помощью инструктора.
Этот опыт помог мне лучше понять свои аутичных характеристики, чтобы улучшить мою уверенность в себе и контроль над своим телом.
Думаю, что когда аутист может управлять иметь такой контроль в таких сложных (быстрых) условиях, то он может иметь хороший контроль во многих (или всех) других ситуациях.
Я думаю, что легче учиться для детей.
А также помогает улучшить уверенность в себе, которая что-то очень важным и необходимым для аутистов.
Дополнительно, я обнаружил, что владелец очень вовлечен в помощь аутистов, а также дружелюбный и добрый; Вот почему я надеюсь, что она будет иметь успех в сотрудничестве с автономии аутисты и “лучшей жизни”, благодаря этому инструменту, среди других средств и методов. “)
– 0:39:14 – О периоде полового созревания
– 0:49:35 – {Оральные дополнения Жанной (организатор конференции) (около создания семьи, лыжи, и другим предметам)}
– 0:57:15 – Детали около лыжного опыта, а также важность того, чтобы сделать что-то
“В аутисты должны попытаться сделать что-то, должно быть смелым и делать (маленькими шагами) то, что они боятся сделать.
Если вы не пытаетесь, то вы никогда не делали, никогда не узнать, не удастся, и вы всегда остаются на том же уровне.
В моей жизни мне удалось преодолеть многие барьеры аутизма, только потому, что я пытался делать то, что, вместо того, блокируется страхом. (…)
Даже если есть проблема, это не конец света, я выживу: я все еще здесь, и так, что “
– 1:04:03 – О создания семьи – Имея счастливую жизнь с или без семьи
– 1:08:55 – О ABA, Томатиса, работающих с телом …
– 1:20:16 – (мать теперь понимает необходимость защиты показал ее сын – отец переговоры о диагностики для его 3-4 ребенка y.o. – Различные – спасибо) 


  • Аудиозапись некоторых дискуссий до начала мероприятия (выпустить в ближайшее время)

  • пресс-статья (в России)
    Пожалуйста, обратите внимание: Есть много недоразумений в этой статье:
    Эрик никогда не говорили о
    – Риск раздражения или проблемы, если кто-то улыбается (…!)
    – “Африка”, а “коренные южноамериканские племена”
    – “Господь” (или любой другой аналогичный)
    – полушария мозга
Posted in - In english -, - По-русски -, Autistic testimonies and thoughts, Conferences, Public oral statements Tagged with: , ,

[en] Answers to “therapists”* in an ABA center in Kyrgyzstan, by Eric LUCAS

KG
*: The word “therapists” (which is the “normal” wording) is here between quotes because, given that autism is not a disease, the personnel or trainers should be called “educators” or “teachers” or something similar.


Here is the audio recording (converted as a video, easier to use) of a questions & answers session in an ABA center in Bishkek (capital of Kyrgyzstan), on 2 february 2016.

This center has a lot of equipments and rooms ; the staff seems good and dedicated, and the children seem to make progresses.

Click on a question, to go there directly.

Posted in - In english -, Autistic testimonies and thoughts, Talks Tagged with: , ,

[fr] Conférence Josef SCHOVANEC – 02/02/2016 – Rennes 2

FR

Posted in - En français -, Autistic testimonies and thoughts, Conferences

[fr] Message global sur l’année 2015 pour mes compatriotes autistes, leurs proches, les pouvoirs publics et les contribuables français (par Eric LUCAS, autiste)

FR
** IL EST **INTERDIT** D’ECOUTER CE MESSAGE EN ENTIER pour les personnes le trouvant “trop long” : il leur suffit d’écouter UNE SEULE section, de quelques minutes, à choisir ci-dessous (cette interdiction a pour but de ne plus entendre “c’est trop long”, merci) :

RACCOURCIS INTERNES DU CLIP (et liens vers d’autres pages ou clips) :
CLIQUEZ SUR LES LIENS bleus ci-dessous pour naviguer facilement et rapidement dans le clip !

* 0:00:00 – PREMIERE PARTIE
Explications principales à propos des difficultés (et scandales) dans la prise en compte correcte de l’autisme en France
** 0:01:21 – Difficultés de communication (Facebook, procès d’intentions…)
** 0:23:22 – Question des egos, de la cause commune, de la confiance en soi
** 0:38:21 – Nécessité d’être aussi dans l’action (pour défendre la cause)
*** 0:39:08 – Parce que face à un système monstrueux
**** 0:41:08 – Problème de l’autisme en France
***** 0:41:45 – Question sécuritaire et pouvoir des médecins publics
****** 0:54:46 – Confusion entre autisme et “pathologie psy” – les crises – la “dépression”
***** 1:10:04 – Fond du problème : les effets pervers de la générosité de la sécurité sociale
****** 1:15:30 – CDAPH
***** 1:20:05 – Absurdité contre-productive de “l’institutionnalisation” – le besoin d’apprendre la société libre dans la société libre – le besoin d’estime de soi / de reconnaissance sociale
***** 1:27:30 – Caste des gens qui profitent du système et qui s’arrangent entre eux
***** 1:30:05 – Etude parlementaire – les milliards
(http://danielfasquelle.blogspot.ru/2012/10/une-commission-denquete-sur-le-cout-et_9.html)
***** 1:32:23 – Autistes en HP
**** 1:33:17 – Trop énorme pour que les gens y croient – le contribuable – les établissements – travailler dans la cité et non dans les centres – etc. etc.
**** 1:35:45 – Tous victimes (ou lésés) sauf la micro-caste
***** 1:38:05 – Les difficultés des pouvoirs publics – la réunion à Matignon (l’absence de coercition et de dissuasion, la non-opposabilité des recommandations HAS)
***** 1:49:04 – Le contribuable ponctionné, contribuant à tout ça

* 1:51:13 – DEUXIEME PARTIE
Plus de précisions et d’exemples – Participation des autistes
** 2:17:42 – Structure de l’Alliance Autiste :
*** 2:18:49 – AA_Entraide (première partie)
*** 2:19:15 – AA_OrgIntl (relations avec les Organisations Internationales (ONU etc.)) (première partie)
(http://allianceautiste.org/wp/category/onu/
http://allianceautiste.org/wp/category/oms/
http://allianceautiste.org/wp/category/unesco/)
*** 2:23:08 – AA_AideExt (Aide Extérieure (non publique)
*** 2:23:56 – AA_Entraide (suite, avec exemple Timothée D)
(http://allianceautiste.org/wp/tag/exclusion-scolaire-timothee-autiste-lyon/)
**** 2:30:49 – Timothée : audience du Tribunal du Contentieux de l’Incapacité
(http://allianceautiste.org/wp/2014/11/affaire-timothee-temoignage-audience-du-6-octobre-tci-simulacre-de-justice/)
**** 2:37:20 – Timothée : “en situation de danger dans sa maison de campagne”changements
danger
apparenter-maltraitance-danger
*** 2:42:11 – AA_OrgIntl (ONU etc.) (suite)
*** 2:45:43 – AA_AideSP (aide par les Services Publics)
**** 2:46:37 – SEPH (Secrétariat d’Etat aux Personnes Handicapées)
**** 2:53:05 – Vagues promesses de désinstitutionnalisation
(http://www.elysee.fr/assets/Confrence-nationale-du-Handicap/11.12-CNH-Relev-des-conclusions.pdf)
**** 2:54:27 – Article 21bis
(http://blogs.lexpress.fr/the-autist/tag/article-21-bis/)
**** 2:56:45 – Justice
**** 3:03:27 – Dr Albernhe
(https://drive.google.com/file/d/0BxQdma0ExLR5QWRONUw0TGdxNFE/view?usp=sharing)
*** 3:11:13 – AA_Education
**** 3:11:43 – Diffamation radio par inspecteur académie (Timothée, amalgames etc.)
(http://allianceautiste.org/wp/wp-content/uploads/2014/10/20141004_AA_lr_MEN_diffamation_Tim_v17.pdf)
*** 3:21:46 – AA_Travail
*** 3:32:31 – AA_Logement
*** 3:32:41 – AA_Santé
*** 3:35:15 – AA_Protection (Protection des atteintes)
*** 3:36:01 – AA_SelfAdv (Self-Advocacy / Auto-représentation)
*** 3:36:15 – AA_Participation (des autistes)
*** 3:51:58 – AA_AssoAutistes (relations avec les Associations d’Autistes)
*** 3:57:05 – AA_AssoParents (relations avec les Associations de Parents)
http://allianceautiste.org/wp/2015/10/demande-visite-urgente-france-rapporteurs-speciaux-onu-personnes-handicapees-autistes/
(4:09:23 – Désespoir / aucune bouée de sauvetage / hospitalisation sous la contrainte)
*** 4:17:20 – CCNAF (Comité Consultatif National des Autistes de France)
(http://CCNAF.fr)
*** 4:26:58 – Autistan.TV
(http://Autistan.TV)
*** 4:29:58 – Autistan
(http://Autistan.orghttp://Autistan.fr)
*** 4:36:44 – Divers (International, projets autistiques altruistes, voyage, ne pas se laisser impressionner…)


Description :

Ceci est un message (vocal) d’Eric LUCAS (“autiste Asperger” / “autiste à haut niveau de fonctionnement”), notamment à l’attention des personnes autistes de France.

En toute simplicité et en toute franchise, dans un exposé improvisé de presque cinq heures, sont exposées (et même parfois dévoilées) de multiples facettes de la mauvaise prise en compte publique des autistes en France, des initiatives pour y remédier, ainsi que de nombreuses explications, confidences, anecdotes, pistes, avis etc.

Etant donné que les autistes et les familles connaissent déjà le problème (sans forcément toujours connaître certains détails révélés ici), cette sorte de “conférence spontanée” serait certainement utile également aux fonctionnaires, aux politiques et à toutes les personnes devant ou souhaitant contribuer à une meilleure équité sociale et une meilleure qualité de vie pour les personnes autistes, jeunes ou moins jeunes, quels que soient leurs degrés d’autisme ou d’adaptation sociale.

Une contribution longue mais riche… et qui n’est pas dédiée aux “médesinges” interneurs néfastes aux autistes (ou autres personnes handicapées).


(P.S. : Si vous trouvez ça “trop long”, considérez que c’est un “livre gratuit” plus facile à écouter qu’à lire… 

– Rien n’oblige à tout écouter en une seule fois.)


CORRECTIONS / PRECISIONS :

  • Le beau-père de Timothée n’a pas été “en prison” au sens strict du terme, mais il a passé 48 h en garde à vue, et a été ensuite astreint au contrôle judiciaire (devait rester proche de son domicile etc.) (et cela doit recommencer fin janvier 2016…)
  • Erreur (confusion) : la mère de Timothée est sortie de prison au bout de quelques jours, vers Noël (sous caution de 75000€), et donc le 11 janvier n’est pas la date de sa sortie de prison mais celle de sa comparution devant la justice en Irlande.
  • Le lien vers le “replay” de RTL (M. Baglan) n’est pas dans une lettre au Pdt de la République (PR) au sujet de Timothée, mais dans une lettre au Ministère de l’Education Nationale (qui a fini par répondre, suite aux lettres envoyées au PR).
    Et M. Baglan parle de “faits de violence” (et peut-être pas “d’agression” mais ce n’est guère mieux). De toute façon le mot “agression” revient un peu partout dans le dossier.
    Lien : http://allianceautiste.org/wp/wp-content/uploads/2014/10/20141004_AA_lr_MEN_diffamation_Tim_v17.pdf
  • Quand il est dit que le taux de pertinence des réponses de la France à l’ONU est proche de zéro, cela concerne uniquement les sujets relatifs à l’autisme (ce qui ne veut pas dire que les autres réponses sont pertinentes ; elles n’ont pas été analysées).
  • Quand il est dit que la collaboration entre certains membres de l’Alliance Autiste s’est faite “quasiment obligatoirement”, c’est dans le sens de “quasiment automatiquement” (ou “spontanément”) en raison d’une grande complémentarité.
  • Et… ici en Russie il faisait -20°C au moment de l’enregistrement, mais -30°C au moment de sa publication, 2 jours plus tard…)


 

Posted in Autistic testimonies and thoughts, Interviews / other messages Tagged with: , , , ,

[fr] Livres de Josef SCHOVANEC

FR
Je suis à l’Est !

Eloge du voyage à l’usage des autistes et de ceux qui ne le sont pas assez

De l’amour en Autistan

Posted in - En français -, Autistic testimonies and thoughts, Books Tagged with: ,

[fr] Conférences de Josef SCHOVANEC

FR
https://www.google.com/search?q=conférence+Josef+SCHOVANEC

(Elles sont très nombreuses.)

Posted in - En français -, Autistic testimonies and thoughts, Conferences

[fr][ru] Autisme – nécessité expériences pratiques sur chemin naturel de la vie – Eric LUCAS – Аутизм – нужны практические эксперименты на естественный путь жизни – Эрик Лукас

RU
Для российских автоматического перевода, прокрутите вниз

Langues : français / russe (audio, avec une interprète)

Ceci est une petite “conférence improvisée” dans une “école de rééducation” (accueillant quelques autistes), avec des professeurs et parents, en Russie

Cliquez sur les liens :



Языки: французский / русский (аудио, с переводчиком)

Это небольшой “самодельных конференция” в “Re-образования школы” (приветствуя аутизмом мало), с учителями и родителями в России

Нажмите на ссылки:

0:00:00: Пуск
0:02:57: Моя презентация
0:05:12: Обучение жизнь в обществе естественно, которые происходят “маленькие клики” для понимания общества – необходимость, чтобы сделать практический опыт
0:09:53: Если вы не понимаете, и если мы не показывают, это бесполезно, – потому что у нас всегда есть наши хорошие причины, – но это трудно объяснить – или просто языковая проблема – проблема или отличается хранилище – мы должны попытаться понять причины наших, которые, как правило, как действует
0:16:02: В случае недобросовестной ситуации, экстремистских или абсолютистской реакции Пожаловаться на компании – компания стремится думать, что причина для большинства является единственным действительным причина – но это справедливо только в данной группе – или у нас есть проблема с социальными кодами – смещение позволяет внешний видение социальных кодов – так мы видим нелепые и отрицательные стороны – жизнь достаточно легко для не-аутизмом человека в данной группе – (адаптация)
0:20:53: Мы вне всех социальных групп – мы видим различные противоречивые и социальные коды – мы логично: если несколько различных групп с каждой группой различных правил и каждая группа утверждает, что это ее рецепт является лучшим, есть проблема, абсурд … – так это не делает нас хотят, чтобы приспособиться к абсурдные вещи – это искусственное – плюс это накладывается на нас – все это поэтому мы стараемся, чтобы положить наши головы, похоже, не оправдал нас – глубокое обоснование отсутсвия
0:24:50: Мы не используем социальные условности оценить, является ли что-то правильно, мы не имеем в виду, что большинство думает, но он чувствует себя (своего рода – личное убеждение – интуитивно понятный смысл добра и зла)
0:26:34: Но для не-людей, страдающих аутизмом, здравый смысл немного приглушены, и это автоматизация социальной группы несет ответственность за решения, что является хорошим и не очень хорошо
0:27:29: аутичного работы с очень глубокими вещами, и вы должны дать нам доказательства того, что мы пытаемся объяснить, она не работает – нужны конкретные опытом
0:29:05: В моем случае, я ничего о теории, механизмы моего разницы не знаю, так что я был вынужден, чтобы узнать только фактическим опытом – мне удалось узнать работу общество, так, чтобы адаптироваться, через ES “кликов”, которые приходят естественно в течение жизненного опыта – это занимает два: теоретические учение, а также практика
0:32:23: Вопрос о моих исследованиях, моя работа – С детства малых проблем с группой – мы должны научиться адаптироваться к группе, но также группа адаптироваться к аутизмом – это м ‘ положить его в школе для детей, имеющих проблемы – это было действительно плохо – … (сувениры эмоции) – почему другие дети так значит для меня?
0:38:11: моя обучение: не очень – ориентирован на субъектов, что меня интересовало
0:38:52: школа жизни – работа Промышленный дизайнер – строгий и методическую – преимущество аутизма – история работу для России (мы выбрали меня, потому что он должен был быть очень осторожны с россиянами !)
0:43:29 Я был в малом бизнесе, вы ставите меня в офисе, кроме – когда клиенты были заперты в моем кабинете пришли 😉
0:44:25 Но не творческая работа – не нажмите непредвиденное по пути жизни: DJ работы – я должен продолжать в промышленности, но я последовал моя интуиция – я был один, я не было друзей, я не мог – я обнаружил мир, где все выглядят счастливыми – я был совершенно непригоден – то, что интересует меня была музыка – музыка это шанс моей жизни, потому что:
– Ди-джей работа:
– Способ жить
– Общественное признание (очень важно для аутизмом – как правило, это делается хуже)
– Я мог бы взаимодействовать с людьми, который был положительным – я мог общаться с людьми полезным, продуктивно – с музыкой, ни один язык, никаких недоразумений – так что теперь мы не передать кусок Битлз, Вы находитесь в меня поймут, достигают
– Откройте для себя различные социальные классы – мне пришлось себя проект в эмоциональных чувствах людей, и я чувствовал, те же самые вещи, как они, и поэтому я в конечном итоге душе много разной музыки (и, таким образом, чтобы оценить различные типы музыки и тогда люди)
0:53:59: необходимость быть очень подходит для людей, которые впереди – теория может быть неправильно – будь интеллектуальной аргументации я думал, песня будет радовать, если бы я не приложить усилия к адаптация (правильно довести музыкальный трек) – если я сделал ошибку, штраф был немедленным: чувство, потому что я очень чувствительна – так что я был вынужден * * быть адаптированы, я имел в доказательство 5 секунд, это действительно научил меня быть приемлемым и прагматичным

Posted in - En français -, - По-русски -, Autistic testimonies and thoughts, Talks Tagged with: , , ,

[en][ru] Discussion about autism between pupils and Eric LUCAS in an inclusive school in Russia – Обсуждение аутизмом между учениками и Эрика Лукаса в школу включительно в России

RU
Для российских автоматического перевода, прокрутите вниз

Languages : english / russian (audio, with an interpreter)

This is a discussion with pupils aged 15-17 years old, in an inclusive school in Russia (a school where pupils with disabilities are mixed with others without disabilities, like it should be everywhere).

Questions (click the links) :

Языки: английский / русский (аудио, с переводчиком)

Это обсуждение с учащимися в возрасте 15-17 лет, в школе включительно в России (школа, где учащиеся с ограниченными возможностями смешиваются с другими, не ограниченными, как это должно быть везде).

Вопросы (нажмите на ссылку):

0:00:00: (краткое введение)
0:02:06: “Что имя и цели вашей ассоциации?
0:11:07: “Как вы понимаете, что вы аутист?
https://www.google.com/search?q=my+name+is+khan
http://www.rdos.net/eng/
0:20:22: “Правда ли, что аутисты сосредоточиться глубоко в одном Это может быть интересно для общества … Примеров / труда, занятости … О маленькие детали …?
0:42:06: (сравнение с иностранцами)
0:47:42: “Какой была реакция ваших родителей, когда они узнали, что вы аутист
0:51:27: “Есть ли у вас семья самостоятельно?
1:01:39: “это твой первый раз в России?
1:02:48: “Почему бы не организовать вещи с компаниями, чтобы использовать аутистов?” (аутизм осознание и принятие выпуск – чувствительность – срывы)

Posted in - In english -, - По-русски -, Autistic testimonies and thoughts, Talks Tagged with: , , , , , ,

[en][ru] Discussion between parents (of autistic children) and Eric LUCAS in a russian day-care center for children with disabilities – Обсуждение с родителями (аутичных детей) и Эрик Лукас в Российском центре дневного ухода для детей с ограниченными возможностями

RU
Для российских автоматического перевода, прокрутите вниз

Languages : english / russian (audio, with an interpreter)
This is a rather casual discussion with parents of autistic children between 5 and 10 years old.

Parents’ questions / some topics  (click the links) :

(at 0:27:59 there was an error, and “much less” has been replaced by “much more” during edition)



Языки: английский / русский (аудио, с переводчиком)
Это случайные дискуссии, скорее, с родителями детей-аутистов Entre 5 и 10 лет.

Родительские Вопросы / некоторые темы (нажмите на ссылку) :

0:01:05: “Должен ли я попробовать свои силы 6 лет, чтобы пообщаться со своими детьми с аутизмом –Другие в детском саду?
(в 0:27:59 Там была ошибка, и “гораздо меньше” была заменена “гораздо более” Во время издания)

0:36:05: “В случае тяжелой формы аутизма, как мы можем работать с нашими детьми, чтобы получить EM Вместо ADAPTE обществу?”
0: ..: ..: (различные предметы – звуки – школы – другие дети – осведомленность – Природа – Животные – выходя из дома …)
1:03:05: отношения с матерью: необходимость помощи и объяснения цель aussi нуждаются в защите и мира
1:09:44: аутизм является неврологическим разница и является “еще один вид жизненного опыта” – значение аутистов – уникальность, специальность – помочь малышу будет ADAPTE, цель aussi помощь _him_ сделать что-то хорошее с его интересами сужается (кв наши сильные стороны) – если вы поможете _him_ специальный на его пути, он станет лучшим специалистом в мире – не Станьте ожидать нормально, и мы не хотим и не нравится этот – уважение и культивировать его отличие и использования как это имеет силу
1:20:13: “Если мой ребенок, например использует игрушку стучать чем-то, я должен прекратить _him_, или позволить _him_ Как реагировать?
узнать теорию и принципы аутизмом (справедливости, логики, sensitory …), чтобы быть BLE глубоко анализировать конкретные ситуации,
1:27:39: Это пример: Отзывы другой день, что произошло с ребенком, делая кризис из-за проблемы со сладким
1:47:53: “Что вы думаете об обучении детей со сладостями, и это не немного, как учебные животных (АБА)?
1:51:18: предложение более ADAPTE упражнений, с четкой связи с полезности в реальной жизни (например, накрывая на стол (с пластинами и т.д.))
2:03:13: Полезные деятельность – животные не говорить
2:04:50: около карты с пиктограммами – проблема с символами и понятиями

Posted in - In english -, - По-русски -, Autistic testimonies and thoughts, Talks Tagged with: , , , , , , , , , , , ,

[en][fr][ru] International Forum ‘Volunteer of Russia’ 2015 : Health limitations : challenges and solutions (presentation by Eric LUCAS) – Forum International “Volontaires de Russie 2015” : Limitations dans la santé : défis et solutions Présentation par Eric LUCAS – Международный форум “Волонтер России 2015: ограничения здравоохранения: проблемы и решения (презентация Эрика Лукаса)

RU
– Text version in english


 – Version texte en français


 – Version sonore en français et en russe / Звук версия на французском и русском языках


– Текст русской версии (Автоматический перевод на русский язык)

Posted in - En français -, - In english -, - По-русски -, Autistic testimonies and thoughts, Conferences Tagged with: , , , , , , , , , , , , ,

[cz] The hard life of non-autistics | Josef SCHOVANEC | TEDxBratislava – Tvrdý život není autista

SK

Posted in - Český -, Autistic testimonies and thoughts, Conferences

[en] Oral statement about dignity in mental health by Eric LUCAS, at the World Health Organization, Geneva

_united-nations
Invited at the mhGAP forum 2015 at the WHO headquarters in Geneva, Eric LUCAS (as an autistic “expert user”) has been able to give testimonies and points of view in various meetings and discussions during these two days.

For confidentiality reasons and other reasons, not all of his statements can be published, but here is a statement made by Eric, during the plenary closing session in the Executive Board room, on friday, 9 october 2015, about dignity and human rights in mental health treatment :

Audio recording :

(this was not supposed to get applause  (there were no applauses for the other statements, except another one))

Backup link : in case the audio player above does not work on your system, right-click HERE and select “save target as” or “save link as” and then open the file. 

Text :

“What I understood in this forum, is that everyone is aware that dignity is essential for mental health treatement, and that there are many organizations and people trying to implement that, with action plans and education to human rights.
I find it very good, but from my experience, my user’s point of view, I know that it is not enough if it remains too much abstract and only rules, many times it is not enough to “reach” the person in her mental world, and then to treat her in a really adapted manner, respecting dignity and human rights.

For me, this topic of dignity and human rights, in itself, shows that, even with the best good will of the world, which I can see here, people who want to help have a kind of “protection barrier” which makes them consider the “mentally ill” persons as “deeply different”.
For instance, for the case of your own family you never speak about human rights, regarding its members.

I think that the first step to help the person, is to understand deeply, really, the person. Not with rules, codes, or science, but with good sense, and compassion.

Although I find all your work indispensable and great, I think that the best way

  • to respect the dignity and human rights
  • and to help the people to go better

is to treat them as you would treat the members of your own family, not otherwise.

Every sign of special treatement, even with good will, is felt by us as a discrimination, and inferiorizing, and it cannot help to go better.

The problem is that it is very difficult for “not different people” to put themselves in the shoes of “different people”, and of course it is frightening.

People who are suffering in their brain or mind, or heart, need to be helped without barriers, without judgement, like when you learn a second language you don’t decide that it is inferior or bad.

If you manage to remove the human barriers, as well as the physical barriers (like being in a hospital, which shows to the person that she is seen as “different” and “a problem”), then it will be much easier to help these persons, and then there will be no human rights or dignity problem, like in your family.
Some people are really mentally ill, and sometimes it’s more a matter of point of view.

The social system also, globally, is not sane, and many times this is why people fall into mental suffering.

For me, many problems come from the lack of understanding, and the fear.
And the solution is : real sincere efforts to understand each others, to communicate, to appreciate everyone, instead of putting people in boxes.

And I don’t know how to learn other languages without the help of the users, especially the bilingual ones.

Thank you.”


There is a also a much longer statement by Eric, which was too long to be included in the official meetings, but it has been read by the staff and by the Director of the Mental Health Department, Shekhar Saxena, who (surprisingly) sent this letter (in french), explaining that “he would like to thank” Eric LUCAS and that “[his] explanations are very interesting and very useful”.


Update of July 2017 : here is a summary report of this forum : http://www.who.int/mental_health/mhgap/report_forum_2015.pdf

Posted in - In english -, Autistic testimonies and thoughts, Public oral statements Tagged with: ,

[en] Conference about volunteerism at the United Nations – oral statement by Eric LUCAS

_united-nations
On june 30th and july 1st 2015 was organized the annual conference ‘Volunteerism – Avenue for social transformation” at the Palais des Nations in Geneva.

Below is an oral statement made by Eric LUCAS, about autism and volunteering :

Backup link : in case the audio player above does not work on your system, right-click HERE and select “save target as” or “save link as” and then open the file.

This audio file includes also the answer made by Olga Zubkova, the head of Vector of Friendship (the NGO organizing the event), during which she invited Eric to participate to the International Forum “Volunteer in Russia” (which he did).

And here is the text :

Good afternoon, I hope that my testimony will be of some interest.

My name is Eric LUCAS, I am a high potential autistic, founder of Alliance Autiste, a self advocacy NGO in France, and representing Autistic Minority International, but what I say now is only my personal opinion.

It is very interesting to attend this conference and to see what volunteerism can do in the world.

Autistics are 1% of the world. Most of us are in special centers or hospitals, which is not decent and not a proper way for us to learn how to live with society.
I won’t give you a list of all the difficulties of autistics, which result mostly of the lack of knowledge and the fear.

A few autistic adults are doing a lot of efforts in order to organize and help ourselves, which is very difficult, because we have communication problems which make it very hard to cooperate, even between us (I did not even notice that Monique who runs also an autistics organization in England, and that I know,  is just behind me).

We are working for our cause from Monday to Sunday, from morning to evening, for most of us.

Some parents are trying to create their own schools or services.

We are overwhelmed and exhausted.

Despite all our efforts, it is difficult to progress without some support from the non autistic society, because we cannot do 100% of the efforts by ourselves.

We need some little reasonable accommodations, but we don’t know how to find it and to make the link between our world and all what I see here today.

In France, for instance, the government politely listens to us, but each time we ask for support, as a national organization, they don’t reply, or they reply that they don’t know what to propose.
They see us only as persons with disabilities who should be addressed by the health sector, they do not consider us as citizens, and it is because they exclude most autistics in special centers, that, indeed, autistics can never become real citizens, and that the mainstream society keeps being afraid by us, and full of misconceptions.

I’m sorry to say things looking like complaints, but we the high functioning autistics we know how to improve the life of autistics in the world, how to help them taking the path of their own special destiny, like any other human beings.

We have no problems working 10 to 14 hours per day, each day, but this is not enough without support.
I don’t know what to say or to ask or to suggest ; I guess that this is just a testimony about some difficulties, showing that the good will is not enough, and that some populations are forgotten.

We have a great potential.
But it is not enough.
Any contact or suggestion would be most welcome.
We would like also to provide our knowledges and experiences to Russia and their autistic population.
Sorry about this statement which is not pleasant and not fully in the topic, but I don’t know how to do better. We do what we can.

Regardless of autism, I think also that volunteerism can help a lot the young to feel part of society, to improve citizenship and to avoid some traps. In many rich countries, the youth is bored and loses itself in negative things. The governments barely understand. If things were better organized, with more good sense and involvement from the public services, everyone could have a better life, thanks to volunteerism. There are many ideas and things to do, but no one cares and no one listens.

Thank you very much.

Posted in - In english -, Public oral statements Tagged with: , , ,

[en] United Nations conference about education, with Kishore SINGH (UN Special Rapporteur) – oral statement by Eric LUCAS

_united-nations
On June 18 2015, Eric LUCAS gave some explanations during a conference about education at the United Nations (at the Palais des Nations in Geneva), presided by Mr. Kishore SINGH (UN Special Rapporteur on education).

Here is the audio recording :

Backup link : in case the audio player above does not work on your system, right-click HERE and select “save target as” or “save link as” and then open the file. 

And the text  :


Good afternoon, thank you very much Mr. Singh,

My name is Eric LUCAS and I am a member of Alliance Autiste, a small NGO made by high functioning autistics.
We try to help oursleves, and also to provide peer support to the younger autistics who still have lots of problems understanding how to live with society.
The social difficulties and other troubles of autistics can be reduced significantly if the proper measures are undertaken in early childhood.

1 % of the children are autistics. Not only they need some special accomodation to receive the usual, classical teaching, but also they need an additional kind of education, which I would call “social education”.
Indeed, one of our biggest problems is to learn how to live with society, to learn its’ codes and non-written conventions, which are strange to us, because they vary with the different groups of people, who all think that their system of rules is the only one correct.

In order to learn society, we need to live inside society, not in hospitals or institutions.

The governements either ignore the autistics (mostly because they don’t know what to do with them), or they park them in special medical places, where they have a kind of non-life, in a fixed artificial world which does not allow them to progress, to experience freely the path of their own destiny, like all of us here.

In France, a lot of public money is given to private institutions (so called “Instituts Médico-Educatifs”) which just keep the autistics instead of educating them, and this is probably an example of bad “private education” with absolutely no positive effect for the user, only suffering and exclusion, and lots of money wasted, whereas it could be used more much efficiently outside of this medical and secluded world.
We can say that these vulnerable children are exploited by a medical lobby, which of course does not want to change.
I talked about this with the health advisor of the french presidency, and even herself mentioned this “reluctancy” as a major problem.

We, the highly integrated autistics, can help society to help autistic children getting out of this nightmare, because we are like a bridge between both worlds, like a Rosetta stone : we understand you (not too bad), and we understand autistics of various levels (at least when they don’t speak we can guess approximately what is going on).

We talk to the governments and even the international organisations, but so far, Im’ sorry to say that I barely figure what to do and who can help us, or at least who really wants to help autistics, at least the youngest ones.

Puedo ver que hay mucha gente que habla español aqui, y quisieramos tambien hacer enlaces con America del Sur y otros paises, para ayudarle comprender los autistas y permitirle una vida con menos sufrimiento.

If someone here can advise us, they can write to contact@allianceautiste.org – or talk to me directly, I do not bite 😉

Thank you very much.


Eric LUCAS

Posted in - In english -, Autistic testimonies and thoughts, Public oral statements Tagged with: , , ,

[en] Right to Life, and Prenatal Genetic Testing for Autism

Written statement to the United Nations by our autistic colleague Erich Kofmel from Autistic Minority International, who is striving to defend the autistics at the UN and WHO in Geneva :

20160612_AutisticMinorityInternational_Right-to-Life

 


More actions by Autistic Minority International : http://www.autisticminority.org/united-nations-conferences/

Posted in - In english -, Autistic testimonies and thoughts, Public written statements Tagged with: ,

[fr] Discours introductif lors de la pré-session d’examen de la France par le Comité des Droits de l’Enfant de l’ONU, le 8 juin 2015

_united-nations
Ce petit discours a été rédigé par les membres de l’Alliance Autiste en charge du dossier, et prononcé par Eric LUCAS devant les membres du Comité des Droits de l’Enfant de l’ONU, à Genève, le 8 juin 2015.

(désolés pour la mauvaise qualité audio)

Pour plus d’informations, voir http://allianceautiste.org/wp/2015/06/audition-comite-droits-enfant-onu-2015/

 

Posted in - En français -, Public oral statements Tagged with: , , , , , ,

[fr] Conférence de Josef SCHOVANEC à la Faculté de Médecine de Tours le 22 mai 2015

FR

Posted in - En français -, Autistic testimonies and thoughts, Conferences

[en] Stephen SHORE, EdD 4.17.2015 (Cleveland)

US

Posted in - In english -, Autistic testimonies and thoughts, Conferences

[fr] Josef SCHOVANEC – Voyage en Autistan – L’invité du jour – Les Maternelles – 2 avril 2015

FR

Posted in - En français -, Autistic testimonies and thoughts, Television / documentaries

[ar][fr] الدعوة إلى إنشاء تمثيل الحركة التوحد في حد ذاتها في المغرب وفي العالم العربي – Appel pour créer un mouvement de représentation des autistes par eux-mêmes au Maroc et dans le monde arabe

MA

Posted in - En français -, - بالعربية - Tagged with: , , , ,

[ru] Идеи, меняющие мир – Стивен Шор (Stephen SHORE)

RU

Posted in - По-русски -, Autistic testimonies and thoughts, Television / documentaries

[fr] Explications sur l’éducation et le besoin des autistes d’apprendre la vie dans la société libre par Eric LUCAS à l’UNESCO, le 17 janvier 2014, Paris

_united-nations
Intervention à l’UNESCO d’Eric LUCAS (Alliance Autiste) représentant Autistic Minority International, avec l’aimable autorisation très exceptionnelle du Comité de liaison des ONG (17/12/14)

Ci-dessous, enregistrement de la traduction simultanée en anglais (par moments approximative, en raison d’une diction un peu trop rapide) :

(si ce lecteur ne fonctionne pas, cliquez ici)

Mesdames et Messieurs,

Merci pour cette exception et pour votre écoute ; je suis Eric LUCAS, autiste à haut niveau de fonctionnement, fondateur de l’Alliance Autiste, ONG d’autistes pour l’entraide et la défense globale des autistes, et représentant ici l’ONG Autistic Minority International, basée à Genève et oeuvrant notamment auprès de l’ONU.

Environ 1% de la population mondiale présente une forme d’autisme.

L’autisme n’est pas une maladie, mais une particularité neurobiologique, entraînant des troubles plus ou moins importants, et résultant toujours en un handicap au contact de la société.

Read more ›

Posted in - En français -, Autistic testimonies and thoughts, Public oral statements Tagged with: , , , ,

[ru] [en] Stephen SHORE : Autism and Asperger syndrome – Стивена Шор Аутизм и синдром Аспергера подростковый и старший возраст 120514

RU

Posted in - In english -, - По-русски -, Autistic testimonies and thoughts, Conferences

[fr][en] Réflexion sur le handicap et les Droits de l’Homme, à l’occasion du Forum Mondial des Droits de l’Homme à Marrakech (novembre 2014) – Thought of an autistic person taking part to the World Human Rights Forum in Marrakesh (november 2014)

MA
En français :
http://fmdh-2014.org/documents/download/57/

(copie de secours sur notre serveur : FR_FDMH2014_MARRAKECH)

In english :
http://fmdh-2014.org/documents/download/41/

(backup copy on our server : EN_FMDH2014_MARRAKESH)

Dans la liste des déclarations : http://fmdh-2014.org/documents/
Posted in - En français -, - In english -, Autistic testimonies and thoughts, Public written statements Tagged with: , , , , , , , , ,

[ar][fr] أفكار لاسبرجر المغربي التوحد – Pensées d’un autiste Asperger marocain

MA

Posted in - En français -, - بالعربية -, Autistic testimonies and thoughts, Public oral statements, Talks Tagged with: , , , , , ,

[en][fr] Testimony and explanations about autism by Eric LUCAS to the WHO (World Health Organization), on october 10 2014, Geneva

_united-nations
For the original speech in English, please scroll down to the text in blue

A l’occasion du “World Mental Health Day” en présence de Mr SAXENA, Mr YASAMI, et d’autres responsables du programme de santé mentale.

Mon intervention est un peu “chaotique” (faute de préparation et de sommeil – j’en ai écrit une bonne partie pendant que d’autres gens parlaient, ce qui n’est pas facile pour moi (TDA)) mais je pense avoir dit des choses importantes, et transmis ce que beaucoup d’autistes adultes veulent faire savoir.
Ce que j’ai dit a été bien apprécié (largement plus applaudi que les autres (8 secondes, d’après l’enregistrement)).
Comme à l’ONU, pas mal de personnes sont ensuite venues me dire à quel point elles avaient aimé ce que j’ai dit.
(Qui d’après moi était loin d’être parfait, mais bon… c’est mieux que rien).
Il y avait beaucoup de spontanéité et d’émotion dans ce que j’ai dit, et de toute évidence j’ai touché les gens (comme à l’ONU en juillet).
En gros j’ai mis les pieds dans le plat, direct ;-).
Mais ça a été bien perçu ; je pense que c’est vraiment utile de “secouer” un peu, et de nous exprimer par nous-mêmes.
D’ailleurs l’OMS soutient cela : la participation des usagers.

Durant mon séjour, j’ai eu de très bons contacts avec deux organismes importants qui défendent les handicapés (mais ceci ne concerne pas que la France).

Je remercie toutes les personnes de notre mouvement en France, que j’ai consultées la veille (n’ayant appris ma participation que 22h avant la conférence, et très occupé dans d’autres choses à l’ONU).
Toutes m’ont dit à peu près la même chose (“Dis-leur que l’autisme n’est pas une maladie”) et je crois avoir vraiment bien insisté là-dessus, en détachant mes mots, en expliquant.
Je n’ai pas pu transmettre tous les messages, et c’est déjà beau que j’aie pu parler aussi longtemps (8 mn).

———————

Ci-dessous, la traduction en français de ce que j’ai dit  :  (l’original est en bleu, plus bas)

(début du ‘copier-coller’, pour publication éventuelle sur vos pages)
***************************************************************************
Traduction en français de l’intervention d’Eric LUCAS à l’OMS (Genève), le 10 octobre 2014 (voir contexte et détails ici : http://allianceautiste.org/wp/2014/10/intervention-eric-lucas-oms-geneve-10-octobre-2014/ )

(Je m’appelle Eric LUCAS, je suis un autiste Asperger, c’est un peu difficile pour moi de parler dans cette situation) (…)

Merci beaucoup pour m’avoir donné l’occasion de parler de mon expérience, et aussi de dire certaines choses au nom des autres autistes comme moi en France, qui m’ont écrit hier pour me demander de vous donner un message très fort (même si ce n’est peut-être pas exactement dans le thème d’aujourd’hui – mais nous les autistes avons rarement l’occasion de nous faire entendre).

Nous voulons vraiment que vous sachiez ceci: nous voulons absolument que les gens comprennent que l’autisme * n’est * PAS * une * maladie *.

Read more ›

Posted in - En français -, - In english -, Autistic testimonies and thoughts, Public oral statements Tagged with: , , , , , , ,

[fr] La thérapie par le voyage – Josef SCHOVANEC – TEDxParis

FR

 

Posted in - En français -, Autistic testimonies and thoughts, Conferences

[en] Testimony about the forced hospitalisation of autistics by Eric LUCAS, to the UN (United Nations) Human Right Committee, on july 16 2014, Geneva

_united-nations

UNHRC logo2

20140716_Invitation_1 20140716_Invitation_2

Main speech of Eric LUCAS :

Ladies and gentlemen,

It’s not easy for me to speak like this in public, because I’m autistic. I was diagnosed with Asperger’s syndrome. But I agreed to give my testimony today at the United Nations because of the way mental health laws are applied in France.

Twenty years ago, I went to a psychiatric hospital and asked for help because I was despaired, because of problems with society that made my life almost impossible. But the doctors apparently did not understand me (or believe me) and they rejected me. They even used the police to take me away from the hospital. Then, because of the suffering and injustice, I started to be slightly violent, shouting and crying, and finally the same hospital, after a decision taken within a few minutes, decided to detain me there, and this lasted for one year and 3 months!

I had no way to defend myself, no clue about how long it would take, no justifications, no hope, nothing, although I was asking for that all the time. Even my family or anyone would not have had the right to take me away from this nightmare.

Not knowing for how long you will be institutionalized is really awful, especially for an autistic person. Two or three doctors who are colleagues decide what they want, according to their fears, beliefs or whatever. You can’t keep your dignity, your pride.

Read more ›

Posted in - In english -, Autistic testimonies and thoughts, Public oral statements Tagged with: , , , , , , , , , , ,

[en] People with autism should be appreciated as they are – Stephen SHORE

RU

Interview of Stephen SHORE by an english-speaking russian television :

Posted in - En français -, Autistic testimonies and thoughts, Interviews / other messages Tagged with:

[en] Stephen SHORE – Life with Autism, Music, Marriage, Professorship & Relationships

US

Posted in - In english -, Autistic testimonies and thoughts, Interviews / other messages

[fr] La comédie de la normalité: Josef SCHOVANEC at TEDxAlsace

FR

Posted in - En français -, Autistic testimonies and thoughts, Conferences

[en] Lydia BROWN – Ignite 2013

US

Posted in - In english -, Autistic testimonies and thoughts, Conferences

[en] Josef SCHOVANEC – The sweet end of the world: Crisis and spiritual quest in contemporary economics

AL

Posted in - In english -, Autistic testimonies and thoughts, Conferences

[en] Dr. Stephen SHORE Interview

US

Posted in - In english -, Autistic testimonies and thoughts, Interviews / other messages

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